Jump to content
ACN Latitudes Forums

Did eliminating certain foods reduce tics?

Recommended Posts

Oops, forgot to log in. That last post to Jeff was from me!


To answer one of your questions, I did take a look at the Members board on the Feingold site. There's so much information there that I've found it a bit overwhelming. I'm having enough of a time getting used to this board! But I'll give it another try. I do see that most people are posting there with behavior and/or learning issues and - THANK GOODNESS - those are not our issues.



Share this post

Link to post
Share on other sites

1. Gluten, corn, soy, citrus, bananas.

2. YES! Thankfully! :wacko:

3. No changes in behavior, well perhaps a little less anxious.

4. 3 days after I found the last hidden ingredients and eliminated those. Glucano Delta Lactone is corn! go figure, and arrowroot is from the banana family! And the corn in his vegetarian vitamin capsules. Now they are gone he's almost completely ticless - except at school and I suspect the moldy smell of the airconditioner and extra stress.

5. He's still very sensitive, we only have been doing this for a few weeks.

Giselle, son Hoyt, age 71/2.

Share this post

Link to post
Share on other sites

I have a FAVOR to ask! Can we update this survey on improvements (or not!) seen from food elimination diets? The first post says what information is good to post. I will compile the new updates here.


I have noticed that the IgG food sensitivity test and food elimination approach has become a fairly common thing for new posters to try for their kids.


At one point, we did this 'survey' thread, which showed a high success rate for that approach. However, we have much more data now, and I think it is very important to update it with the new information, to keep our data points 'accurate'.

As Patty hinted at on another thread, if you don't eliminate all the sensitivities, you might not see improvement, so this can skew the results, so please be specific on whether there was a test done, what was eliminated, and for how long.


These diets are a lot of effort for the parent and certainly challenging for the children. It will really help our community to help us understand whether it still seems to be worthwhile. So be 'honest' if no improvement, we aren't looking for folks trying to agree, we are looking to uncover the most common paths to success.


And for those for whom this seemed to work, if the tics came back later (while the food was still out of the diet), let us know. This is important given the thinking that these tics can just wax and wane.


I will bump up other survey threads for the same reason ...it has been a LONG time since they were posted.



Share this post

Link to post
Share on other sites

This thread has really opened my eyes to the whole food sensitivity and tic thing!

My ds just started ticcing in November and I realized that we had just bought some new juice that has no HFCS to sweeten it, etc. My ds really liked the grape juice blend so I started buying it and he's been drinking it every day. He's also been eating a lot of chocolate b/c of the holidays and birthdays we've had lately. I can't wait to start eliminating things for him and see if we see any improvements.


It's all so overwhelming and I haven't found an environmental doctor yet. My ds was just seen by the pediatrician who told me that these tics should clear up as he gets older...well, that doesn't help me help my ds get relief from them, does it? I have ds on a fish oil supplement for now but if that doesn't help or I see worsening of tics I may switch him over to a flax oil supplement.


Thank you all for this information. I was beginning to despair that there was no hope for us!

Share this post

Link to post
Share on other sites

hi all !


i have a 12 year old who have had severe tics incl. body jerking and barking about half a year ago until i gave him the following vitamins , minerals and INHIBITORY amino acid supplements. his tics are down very considerably and now its reduced to a very little bit of sniffing and not much more. please note that taking away artificial coloring, sweeteners, soy and eggs ( among others ) from the diet is very important.



vitamins and minerals :


vitamin B-50

omega 3 with vit E

vitamin C

cod liver oil ( vit A + D )

calcium-magnesium- zinc


grape seed extract



INHIBITORY amino acids ;








most if not all of these items can be found at your local health food shop and they are relatively inexpensive. please note that each case is different so it may or may not work with your child. I AM NOT A DOCTOR, just a concerned parent like most of you in this forum and came up with this formula by trial and error after doing some research on the internet.


this is NOT a recommendation , just wanted to let everyone know what worked for us.

Share this post

Link to post
Share on other sites

thanks for sharing your treatments, which are similar to that which has worked for many of our kids :wacko:


I do just want to point out to avoid confusion that 5HTP is NOT an amino acid, but is a precursor to tryptophan which in turn stimulates serotonin production.These are neurotransmitters and not amino acids




edited to add: my info above on this is INCORRECT as both 5htp and tryptophan are classified as essential amino acids

Share this post

Link to post
Share on other sites

hi chemar !


thank you for pointing that out and sorry if i caused any confusion. by the way, is there any other mineral , vitamin , amino acid or neurotransmitter that you think might be helpful ?



Share this post

Link to post
Share on other sites



Actually tryptophan is an essential amino acid. Many sites refer to 5HTP as an amino acid also, but i couldn't come up with one other than Wiki that i thought was really creadible.


My understanding is that some amino acids act as neurotransmitters. I really only remember this because I recently used 5htp for my oldest son during the head shaking flare. I remembered from a post of yours that you prefer trytophan as opposed to 5htp. I thought 5htp converted to tryp instead of tryptophan converting to 5htp. The conversion and precursors get confusing. Soooo, the info that you provided ( and Micheles wonderfully detailed post regarding here DAN Dr. visits)lead me to really looking at amino acids (have much to learn!). It's looking to me like my youngest son is probably really lacking since his protein intake is so limited. Without the amino's he may not be utililizing the nutrients like he should.


As always thanks for the tons of valuable info you provide. This was only meant for claification, as usually these things are talked about here more in regards to their function as neurotransmitters, than amino acids, but recently i have been feeling like balancing aminos may be very important to youngest son.

Share this post

Link to post
Share on other sites

1. What foods was your child sensitive to?

2. Did eliminating them reduce tics, and if so how much (no difference, minimal, significant, major)?

3. Did you notice other changes from elimination of foods, e.g. behavior.

4. How long did it take to notice a difference (for those that saw any difference)?

5. Current status (e.g. no longer sensitive)


So far dairy, Im guessing the Casein in it.


It reduced tics from multiple episodes a day where she would have a multiple tics every few seconds to only a handful of tics through out the whole day.


At first she even acted happier, more compliant but lately she is acting oddly again. Im guessing maybe I should cut gluten next.


It took only a matter of days for tics to start reducing.


We are still off of dairy, if she does have any she starts to tic the next day.

Share this post

Link to post
Share on other sites

thanks so much for the correction re 5HTP and tryptophan classification as amino acids as well as neurotransmitters, Kim


not too sure why I had always believed them not to be true amino acids, and so I do appreciate the clarification there :)

Share this post

Link to post
Share on other sites

hi everyone !



do you think its a good idea to add the following to my son's daily regiment of vitamins, minerals and amino acid supplements ( he has TS ) ?



1) CHLORELLA - i understand that it is supposed to mop up toxins and other heavy metals from his system ; and ,


2) MANGANESE - which is supposedly to help in the normal functioning of the nerve transmitter system ?



anybody here has any experience with these supplements ? would appreciate a reply.






Share this post

Link to post
Share on other sites

I know it is an old post but i am a bit confused about food elemination. Does it worth starting eleminating diet by fiegold if my DD has no food allergist ( she had blood test for it)?

Thank you .

Share this post

Link to post
Share on other sites

Did she have the ige or the igg (sensitivity)? A lot of things showed up on the sensitivity blood test for ds and that's where I started.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:

      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic