matis_mom Posted September 11, 2010 Report Share Posted September 11, 2010 Another concerned Father: 4 weeks ago my ds9 was diagnosed with PANDAS. My entire family went to an ENT specialist to be tested for strep as my ds6 had symptoms and my dw. I had no symptoms. Throat swab was done. Wife was put on sulfamethoxazole (Generic for Septra) and son was given the same. I was not given anything. Test for strep came back positive for my ds6, dw was negative as mine. A week later my ds6 still had symptoms as did my wife. Son 6 was put on another week of abx and wife now had a bad sinus infection. So I went back in and had a blood test. Since I'm new to this and did not know all the different tests I asked for the blood test to show if I'm a carrier. They screwed up and only did the test to show if I was exposed to Strep. This test came back positive showing I was exposed. I went to an ENT and asked him. He said the only way to test for carrier was throat culture. He did notice that I had a sinus infection coming on. I was given Levaquin 750 mg for 10 days. Now we read that we should have all been tested for Titer and ASO. Now we have all been on Antibiotics that ended today 9/10/10. Do we have to wait 30 days before we can take this test? Also, what are the correct test names that my family should have to determine who's the carrier and if the ABX are working? And can someone tell me what blood test is the MP? A prior post mentioned MP and cannot find what that stands for? And what does it test? I made it very clear when we went to the Specialist that I wanted the best possible test to check for the carrier in our family. And he ORDERED regular blood work! I'm so upset at this post. I feel very defeated and very upset that not one doctor has suggested this when we were all SICK. STAY STRONG AND STAY TOGETHER SO WE CAN ALL DEFEAT THIS!!! I was just telling our PANDAS doc that there should be a "PANDAS FAMILY SUPPORT SPECIALIST" to deal with the rest of the family! We've gotten the run-around too, and I've gotten the "oh you poor crazy woman" look so many times, I don't even care any more. I just want to be DONE with this business!!! Link to comment Share on other sites More sharing options...
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