Mari Posted March 16, 2010 Report Share Posted March 16, 2010 Still trying to figure out if my child has PANDAS --he did not have an acute onset of symptons----He has Autism and has had motor and auditory tics since he was 3 (when to me he'd fit that profile of PANDAS more) at that time he had a lot of OCD symptons--He is now 11 and has been experiencing almost daily and sometimes multiple times during the day headaches from mod to severe in nature for 6 months. He had some Bloodwork done in Dec 2009 which showed high TITERs and high Lymph--(did Keflex for 10 days ) repeated in Feb 2010 ---High titers , high Lymph, Low WBC----did 10 days of Zithromax-----repeated labs----Titers dropped to 417 (about 40 Points) Still waiting on DNASE--lymph still high at 50 and WBC came up but still low at 4.54-----Has anyone else's child bloodwork shown changes in their Lymph and WBC numbers? Link to comment Share on other sites More sharing options...
Fixit Posted March 16, 2010 Report Share Posted March 16, 2010 Still trying to figure out if my child has PANDAS --he did not have an acute onset of symptons----He has Autism and has had motor and auditory tics since he was 3 (when to me he'd fit that profile of PANDAS more) at that time he had a lot of OCD symptons--He is now 11 and has been experiencing almost daily and sometimes multiple times during the day headaches from mod to severe in nature for 6 months. He had some Bloodwork done in Dec 2009 which showed high TITERs and high Lymph--(did Keflex for 10 days ) repeated in Feb 2010 ---High titers , high Lymph, Low WBC----did 10 days of Zithromax-----repeated labs----Titers dropped to 417 (about 40 Points) Still waiting on DNASE--lymph still high at 50 and WBC came up but still low at 4.54-----Has anyone else's child bloodwork shown changes in their Lymph and WBC numbers? I am not the one to give you a full answer on these questions.....but if i am correct on one part, maybe someone can back me on their thoughts,experience, knowledge... Maybe we are looking for results too quick.... 1) being duration of illnees 2) certian things like lyme, mp and maybe even strep may take longer than 1 or 2 rounds of abx and may take 6 months to a year depending on how chronic...this mind you is part of my new theory....... 3) and even in healthy person if you get sick and it runs it's cours in 7 10 days....you still feel like doody for up to a month later...so that would mean somethin is still effecting your body it sounds to me like you still have some things that need to be cleared from him!! JMHO Link to comment Share on other sites More sharing options...
Mari Posted March 16, 2010 Author Report Share Posted March 16, 2010 What I am trying to ask is has anyone else's child with a PANDAS diagnosis had elevated lymph numbers and/or low WBC numbers? Thank you Link to comment Share on other sites More sharing options...
kcdc3 Posted March 16, 2010 Report Share Posted March 16, 2010 My dd had LOW Lymph on her bloodwork. My pediatrician did not even mention it when he called me with the results and I only noticed it when I reviewed the bloodwork myself. Still do not know what it means. Link to comment Share on other sites More sharing options...
7upMom Posted March 16, 2010 Report Share Posted March 16, 2010 What I am trying to ask is has anyone else's child with a PANDAS diagnosis had elevated lymph numbers and/or low WBC numbers? Thank you My son 9 y/o has had high lymphocyctes whenever they run bloodwork on him, I have no idea why, he does not have low WBC everytime though, but have found wbc in stool samples which is not common. Took stools in a couple times because there was blood in his stools he has had a lot of constipation/diarrhea issues. Have an update immunology appt next week they did a full workup on him so we are curious to see how these numbers turned out on him. Link to comment Share on other sites More sharing options...
trggirl Posted March 16, 2010 Report Share Posted March 16, 2010 We had high lymphs too. Normal WBC though. I wonder if that is a clue to the T cells being possibly involved in what is going wrong? Link to comment Share on other sites More sharing options...
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