Kawaskis Disease

[OTSMITH]

We have been dx w/ Sydenham's Chorea. I have never been fully sure of that dx. Now they are throwing out words like "Kawasaki Disease" on top of the sydenham's . Anyone have any experience with hthis link?--J

[sf_mom]

In a little bit of rush but I wanted to answer your post. Originally, Kawasaki's was thought to be linked to RF.... the problem is they had problems finding the strep. I've attached a study out of Japan where it is linked to the S pyogenes (Strep A) which is inclusive of the M1 and M18 strains. The reason is... we have a very strong link between a child who had Rhuematic Fever, my children getting sick, of which, one hospitalized for Kawasaki's at the time and all five children at playdate potentially PANDAS. Kawasaki's shares 92 symptoms with Rhuematic Fever.

 

Dr. K... as well as many others are very interested in our case history because of the none genetically related children, RF, Kawasaki's, PANDAS connection. If it was Syndenham's or Kawasaki's the treatment should be the same IVIG/antibiotics.

 

http://www.springerlink.com/content/l34qj830548q4q46/

[OTSMITH]

Thanks for the Reply SF.

 

It just tells me this post-strep rheumatic fever, sydenham's chorea, kawaski diseae-thingy is never ending......

[sf_mom]

It is never ending and you would not the first with the Kawasaki's connection nor will you be the last. The good news is.... if it was/is Kawasaki's IVIG is an approved method of treatment for insurances purposes.

 

 

 

 

 

Thanks for the Reply SF.

 

It just tells me this post-strep rheumatic fever, sydenham's chorea, kawaski diseae-thingy is never ending......

[PKM]

What symptoms is your child presenting with that make the doc's think Kawaski's??

[sf_mom]

Here is a link to symptoms of RF and symptoms of Kawasaki's:

 

http://en.diagnosispro.com/disease_compari...5643-19125.html

[OTSMITH]

What symptoms is your child presenting with that make the doc's think Kawaski's??

 

 

She has SEVERE irritability. and the main thing is her hands and feed, sometimes her lips are

BRIGHT<BRIGHT red. people comment on them all the time. Her current dr.s have mixed views. if not kawasakis, we have no clue why her ands and feet are red. they mentioned needing to detox the strep out of her. any one have any advice?

[sf_mom]

I am assuming that they are referring to IVIG. Sometimes it is thought of as an anti-toxin because the toxin that is thrown off is so overwhelming to the child. 2 m.g./per kilogram IVIG is the standard treatment. How old is your daughter and when do you think she came down with Kawasaki's..... Our son's lips have been capped since exposure in 2007 but they are starting to get better.

 

-Wendy

 

 

 

What symptoms is your child presenting with that make the doc's think Kawaski's??

 

 

She has SEVERE irritability. and the main thing is her hands and feed, sometimes her lips are

BRIGHT<BRIGHT red. people comment on them all the time. Her current dr.s have mixed views. if not kawasakis, we have no clue why her ands and feet are red. they mentioned needing to detox the strep out of her. any one have any advice?