Sad and need feedback

[Fixit]

Just one little comment: I was switched to minocycline some time when I was a young lady (can't remember from what I was switched), and things got very bad. It took a few months to figure out that it wasn't that the mino was failing to work, it was that I was reacting to it (lupus reaction). Later on, I also reacted to doxycycline (given for malaria prophylaxis while traveling.) Now, I can't take any cyclines and doctors won't prescribe them to my kids, either, based on my reactions.

 

Is he having any signs of an allergic reaction? I had a rash that came briefly and then disappeared, as well as mouth sores, and bad joint pain... in addition to the brain stuff.

 

 

Hi Guys

 

today hasnt been such a good day ,and yesterday wasnt that great either.Danny is soo ticccie and anxiety is so high.I can just about be near him for a minute.Im not sure if its the minocycline or the IVIG?He had his second dose last friday 2-19 and was on zith for a week .Than she switched him to minocycline I dont remember why Ill call monday.Also he is tired not real tired just tired.Everything you say hes ticing.Says hes hearing us stammer again.

 

The 1st IV he had in the summer was 1.?grams I dont know and I dont speak to that MD anymore.I was much happier after the 1st and 2nd IV.Im also interested in te brand of IVIG.Should I tell the MD I want gamaguard?Does it really matter that much?

 

Melanie

 

mom2-2, you are such a wealth when it comes to the thyroid thing.....this is good stuff to know!!!! I love you...so it could be a particulare abx

DS started thyroid meds a couple of days ago

Getting husband check and for lupus..his mom has a version of it but it looks my dh has the butterfly

is clarithroymycine ok

is prednisone ok

 

 

I can only speak for myself. I can't remember having had clarithromycine, but I have had Medrol packs (steroid) and have had great results from those, though day 2 was always pretty darn moody.

 

I did not mean to suggest that everyone would be allergic to minocycline since I know that allergies can be very individual - but I wanted to raise it since this caught my eye since I also got much worse when switched to minocycline.

 

Do you think there is correlation between lupos and minoctlcine or just you and lupus and minocycline(again thanks because i would have never thought of that)

[nomoz]

Just one little comment: I was switched to minocycline some time when I was a young lady (can't remember from what I was switched), and things got very bad. It took a few months to figure out that it wasn't that the mino was failing to work, it was that I was reacting to it (lupus reaction). Later on, I also reacted to doxycycline (given for malaria prophylaxis while traveling.) Now, I can't take any cyclines and doctors won't prescribe them to my kids, either, based on my reactions.

 

Is he having any signs of an allergic reaction? I had a rash that came briefly and then disappeared, as well as mouth sores, and bad joint pain... in addition to the brain stuff.

 

 

Hi Guys

 

today hasnt been such a good day ,and yesterday wasnt that great either.Danny is soo ticccie and anxiety is so high.I can just about be near him for a minute.Im not sure if its the minocycline or the IVIG?He had his second dose last friday 2-19 and was on zith for a week .Than she switched him to minocycline I dont remember why Ill call monday.Also he is tired not real tired just tired.Everything you say hes ticing.Says hes hearing us stammer again.

 

The 1st IV he had in the summer was 1.?grams I dont know and I dont speak to that MD anymore.I was much happier after the 1st and 2nd IV.Im also interested in te brand of IVIG.Should I tell the MD I want gamaguard?Does it really matter that much?

 

Melanie

[melanie]

Hi

 

I didnt give him the minocycline.The immunologist gave me some Maybe it was for his acne.He has changed since being on it .The acne hasnt changed at all.He does seem to have like a rash on his face not acne more like flat looking .Oh Im tired of playing DR.Wheres Dr House when you need him!! Were having family over today lets see how it goes.He does seem a bit calmer this morning.

 

Melanie