Jump to content
ACN Latitudes Forums
Sign in to follow this  

My child has tics, how can I help him?

Recommended Posts

Hi to all,


We get so many questions like this and I think it would be great to have a reference link with ideas that we can paste in when they ask this question. Look at Sheila's medical help link--500 views in 3 months.


Welcome, and please know that we have all gone through, or are still going through the worries that you must feel for your child. We have learned from eachother here. The good news is that there IS a lot you can do to help your child! As you go through your journey, please share what works for your child so that others can benefit.


1. Most mainstream doctors don't know about alternate (non-pharmaceutical methods) of healing to minimize and potentially eliminate tics, as opposed to drugs to just try to treat the symptoms. If you don't already have a knowledgeable doctor, you will have better luck finding a doctor here:


Finding medical help



2. Initial testing and treatment can run from $1000 to $3000 if you go this route. If you have PPO insurance, 50-70% may be covered. If cost is an issue, in general naturopaths may be less expensive than MDs. But the tests themselves (at the labs) are fixed costs--though if you pay in advance and then bill insurance you can save a lot. This does not include costs of supplements or restocking your kitchen shelves with different food if needed.


3. Tics can often go along with other comorbid conditions such as OCD, ADHD, delayed sleep, which can be more disturbing to the child than the tics. Improvement can often be seen across the other conditions also as the tics improvement. Usually a TS diagnosis is made after a year of multiple motor tics and vocal tics. There are other tic syndromes such as transient and chronic tic syndromes, whose symptoms are less severe than TS symptoms.


4. If you don't choose to use a doctor, then this site (and the internet in general) is a gold mine of information for ideas re triggers to avoid and healing. Much of the process is trial and error to see what helps your child, but most of the regulars have found substantial improvement. The more you understand, the more you can help your child.


5. Some natural methods some people here use (can be different combinations of below--not every method works for every child of course).


-Doing an elimination diet (per the Doris Rapp book "Is this your child") to remove common foods that kids can be sensitive to. Removal of Wheat/gluten, Milk/casien, corn, soy, eggs, peanuts....can all help, depending on the child. Different children will have different sensitivities, but many of our kids have some.



General list of tic triggers from Latitutudes



-Avoiding artificial color/flavors/preservatives, and sometimes salicylates, aka the Fiengold diet at www.feingold.org. Some also do failsafe which is similar but adds amine elimination. (Lists exist on this site of the salicylates/amines).


-Avoiding or limiting sugar/corn syrup. (I personally think the sugar reaction can be due to yeast issues)


-Avoiding 'screens', e.g. computer/TV/gameboy/big screen movies. Try it for your child for a week straight (camping is a great time to try it), as the effect can be lingering and cumulative. Summary of poster's successes here...I think 15 or 17 now, though the summary hasn't been updated.



-Trying supplements, either via a customized program or from www.bonniegr.com If you do supplements, in an ideal world you will do them one at a time to see if your child reacts to one of them.


-Trying probiotics such as bifidus, acidophilus. Make sure they are 'live' --some prefer yogurt, some refrigerate capsules.


-Tying EFAs (essential fatty acids) such as Omega3's (flax or fish oil) and GLA (evening primrose or borage oil). Some people feel that many children with tics/OCD can't get the Omega3's from the flax oil, so they try fish oil instead. Some have a reaction to fish oil. Again, watch as you add these. Also, if you get fish oil, be careful of mercury issues (from the mercury in fish). We get ours Molecularly distilled.


-Trying enzymes for better absorption and/or digestion of proteins/fats/carbs/fenols


-HEPA air filter for mold, which can affect moods. Also dustmites for some.


6. Other medical conditions

..that can result in tics--we have threads on all of theses


Pyroluria (lab test doesn't require a doctor signature)

Gluten/Casein intolerance (urine, blood or stool test, varies)

Yeast/fungal overgrowth (at home 'free' spit test to get started, also urine or stool test).

Vitamin/Antioxidant deficiencies (lab test doesn't require a doctor signature)

Parasites (usually a stool test)

Mercury or other heavy metal toxicity (hair or blood test)

MT protein issues (newer item here, people are still investigating)


7. Most of us here on Latitude consider 'drugs' less preferrable to alternative methods, as drugs don't treat the underlying issues and can have side effects. Virtually all of us think that asking a child to control the tics not only doesn't work but creates poor long term esteem issues and increases stress and thus tics. Loving acceptance in the home is so important.


8. Everyone is welcome to come here for support and understanding! Try to read key threads and ask questions. One compiled summary thread of specific things where you may see improvement in one week is (with lists of the success of others who have tried it).




9. Finally, most of us pray for help in finding the right path for our children. We believe that God has helped us here. We certainly respect that not everyone else feels that way however.




I hope our community here will add as you have time. Maybe something on what worked/works best for your child.

Share this post

Link to post
Share on other sites
Guest jean chan

Thank you Claire, this is very helpful for new comer like me..


B) jc

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:

      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic