bev Posted February 4, 2010 Report Share Posted February 4, 2010 Hi, This is a message for 'Jewels' from the UK. I am also in the UK and cant find anyone who understands even the smallest thing about tics - have been offered clonidine - but no diagnosis etc.. I was wondering where in the UK you have found the help for your child? Would it be possible for you to give me details of the Doctor you have found? Many thanks. Bev Link to comment Share on other sites More sharing options...
thereishope Posted February 4, 2010 Report Share Posted February 4, 2010 (edited) . Edited October 18, 2016 by vickie Link to comment Share on other sites More sharing options...
bev Posted February 4, 2010 Author Report Share Posted February 4, 2010 There is another poster "lola" from the UK. You can search in the keyword section to pull up her profile. I suggest messaging her since she hasn't posted in awhile. If you go to their profile, you can send a message and that gets bounced to their personal email so they'll know to check it. Hi Vickie, Thanks so much for that info. I have sent a message. Bev x Link to comment Share on other sites More sharing options...
jewels Posted February 5, 2010 Report Share Posted February 5, 2010 Hi Bev, I have just sent you a PM with the name and full address of our ped in Brighton. I've had some sleepless nights with my dd, and I missed your forum post. Dr T, e-mailed me with the names of 2 UK experts in PANDAS, and I've forwarded them on to you. Thankyou very much Dr T for the info. Let me know if you need any help. Jules Link to comment Share on other sites More sharing options...
bev Posted February 5, 2010 Author Report Share Posted February 5, 2010 Hi Bev, I have just sent you a PM with the name and full address of our ped in Brighton. I've had some sleepless nights with my dd, and I missed your forum post. Dr T, e-mailed me with the names of 2 UK experts in PANDAS, and I've forwarded them on to you. Thankyou very much Dr T for the info. Let me know if you need any help. Jules Hi Jules, Thanks so much for all the information - I have sent a reply with more questions - sorry! Also thankyou Dr T! Bev x Link to comment Share on other sites More sharing options...
NellieNoodelz Posted November 8, 2014 Report Share Posted November 8, 2014 Hi there, I live in Brighton. Could you please send me the details of the Dr who understands PANDAS please? Many thanks Link to comment Share on other sites More sharing options...
bigmighty Posted November 10, 2014 Report Share Posted November 10, 2014 We will be in Brighton this summer and it would be great to know the name of someone we could contact in the event of a true emergency. Jewel, if you wouldn't mind sending me a PM, I would certainly appreciate it. Many thanks in advance. Link to comment Share on other sites More sharing options...
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