alderliefest Posted February 2, 2010 Report Share Posted February 2, 2010 I am a 22 year old and I have had PANDAS for 10 years now. I was diagnosed at 12 but no one knew how to treat this or what to do. No one would listen to me or my mom for years, and ignored my extremely high ASO titers (1450 in 2006). My ASO titers have always been high. Recently they have been what I call "low" at around 670. I finally am seeing a specialist who I noticed posts on this page, Rosario Trifiletti. I just started 150mgs of clydamicin twice a day for 15-30 days depending. I am hoping this will eliminate my symptoms, anxiety disorder, OCD, separation anxiety, depression, and excessive sleepiness. I also have a 2 year old daughter who I sometimes have difficulties taking care of because of my anxiety. All I want is to be better and for no one to have to suffer this long, like I did. I would just like to hear stories of others who have overcome this disorder, or people in treatment, and if there is anyone out there not in the "pediatric" age that has PANDAS. thanks for listening. Jane Link to comment Share on other sites More sharing options...
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