Suzan Posted January 1, 2010 Report Share Posted January 1, 2010 (edited) This consolidated list by State is a list of doctors that was taken from the original great thread (see link) about doctors that parents have had experiences with. Refer to the original post for more detailed comments from parents who have children with PANDAS. http://www.latitudes.org/forums/index.php?...;hl=doctor+list I don't update this list any longer but I know the link above still gets additions posted to it. Arizona Dr. Dinesh Talwar, Pediatric Neurologist University Medical Center in Tucson, Arizona. http://www.wellness.com/dir/2012717/neurol...rology-assoc-md Robert Hellmers, MD Arizona Allergy Associates (Deb. Lowe contact) – Only treats PANDAS patients (antibiotics, steroids, ivig) Phoenix AZ 480-344-4460 Dr. Christopher Spiekerman West Valley Office 4137 N. 108th Avenue Phoenix, AZ 85037 (623)877-7337 http://www.dvpeds.com/Practice/Christopher...ekerman_DO.aspx VERY proactive with PANDAS and willing to discuss with other docs, He recently gave permission (actually requested) to send parents who need PANDAS help his way. California Nancy Mullan MD - Two parents that have PANDAS children from this and the TS forum, have been helped very successfully by this Dr. 2829 W. Burbank Blvd, Suite 202 Burbank, CA 91505 Telephone: (818) 954-9267 Fax: (818) 954-0620 http://www.nancymullanmd.com/index.html Dr. Brock Bernsten - Pediatrician, willing to listen and support whatever recommendations immunologist made including open IVIG order if required. Willing to do additional research but not very familiar with PANDAS 3838 California St. San Francisco, CA Phone: (415) 666-1860S Frederick A. Lloyd, M.D. - Has several PANDAs patients, knows Margo Thienemann, listens well, responsive, will provide antibiotics in conjunction with other Dr. recommendation, open to IVIG prescription if recommended by another Dr. Palo Alto Center 795 El Camino Real Palo Alto, California 94301 Phone: (650) 853-2992 Margo Thienemann MD - Specializes in Forensic Psychiatry, Geriatric Psychiatry, Internal Medicine, Adolescent Psychiatry & Pediatric Psychiatry, Psychiatry.... OCD & Has well over 20 PANDAS Patients 900 Welch Road Suite 207 Palo Alto CA 94304 Phone mail: 650 324 3241 Dr. Frederick Lloyd, Pediatrician - helped with diagnosis, prescribed antibiotics, did a prednisone trial, and IVIG at Lucile Packard. Palo Alto Medical Foundation, Palo Alto Thomas Lin, M.D. UCLA Board Certified Pediatrician Gave us a diagnosis when no one else could. Very friendly, easy to talk to, and seemed to know PANDAS quite well. His son is autistic and has OCD symptoms. Believes in infections other than strep causing issues too. No treatment protocol to post yet. 4634 Barranca Pkwy Irvine, CA 92604 office: 949-681-0777 fax: 949-681-0788 www.irvinekidsmd.com e-mail: email@example.com Colorado Dr. Issac Melamed, Immunologist with IVIG infusion center – very proactive and thorough Centennial, Colorado 720-488-0331 Thomas Smith M.D. - Dr. Smith is not knowledgeable about pandas but will give IVIG if child has been diagnosed with PANDAS first is advised by another doctor on proper IVIG protocol. Center for Cancer and Blood Disorders The Children's Hospital, Littleton Clinic 7720 South Broadway, Suite 110 Littleton, CO, 80122 Phone 720-777-9840, Fax 720-777-9855 firstname.lastname@example.org Connecticut Dr. Nancy O'Hara in Connecticut. An excellent DAN. The treatments include gluten/casein free diet, numerous supplements and neurofeedback. http://drohara.com/information/documents/N...er-Fall2007.pdf Denis Bouboulis (an excellent immunologist) in Darien, CT one hour from NYC... This recommendation is from this thread: http://www.latitudes.org/forums/index.php?...art=#entry41096 17 Old Kings Hwy South Darien, CT 06820 Phone: (203) 655-9904 Fax: (203) 655-8948 Florida Dr. T Murphy now in Tampa Florida. She is very good… Ped psychiatrist and sees many PANDAS and TS cases and was on the Swedo studies and does research in these areas. Great interview with Dr. Storch who is working with Dr. Murphy. He mentions her and PANDAS in the interview and how to get a hold of them. University of South FLorida 800 sixth Street South, Box 7523 St. Petersburg, FL 33701 Phone 727-767-8230 fax- 727-767-7786 email: email@example.com Dr. Bradstreet, Dr. Rossignol and Scott Smith, PA. DAN practitioner, has two boys that have PANDAS! Tests ASO and antiDNase titers but does not believe they have to be high, treats with antibiotics, steroids as treatment and as a diagnostic tool for the usefulness for IVIG. Doctors in this practice are extremely accessible. First appt in person but most/all appts can be done over the phone. The nurses are extremely helpful and efficient. They usually return all emails within 24-48 hours http://www.icdrc.org/ Dr. David Berger – Dan! Doc. Knows Swedo’s work, believes in PANDAS, not sure what his stance is on antibiotics but it’s worth the call if you are in his area. 3341 W Bearss Avenue Tampa, FL 33618 (813) 960-3415 - Phone (813) 960-3465 - Fax http://www.wholisticpeds.com/ Jason Spielman, Psy.D. - OPEN to pandas and will give antibiotics but not IVIG or any other. Licensed Psychologist Director of Program Services NeuroBehavioral Institute 2233 North Commerce Parkway Suite 3 Weston, Florida 33326 954-217-1757 - office 954-385-3807 - fax Georgia Dr. Richard Wager, Pediatrician 6000 Lake Forrest Dr NW, Suite 110 Atlanta, GA 30328 Illinois Dr. Kovacevic in Chicago was very helpful. GRANT SQUARE MEDICAL CENTER 333 Chestnut, Suite #103 HINSDALE, IL 60521 Phone Numbers Telephone: 630.986 1010 Fax: 630.986 1015 www.webpediatrics.com (phone consults are possible) Iowa No guarantees but these doctors follow the DAN! protocol. Worth calling- autism doctors are usually familiar with PANDAS. Carolyn Walker Prevention & Healing of Iowa 6901 Hickman Rd. Urbandale, IA 50322 ph: 515-727-4141 fax: 515-727-4848 Jon S. Ahrendsen, M.D. Wright Medical Center 215 13th Ave., SW Clarion, IA 50525 ph: 515-532-2836 fax: 515-532-2523 Dr. Sasha Khosravi psychiatrist in Des Moines connected our son's "array of dots" and suspected PANDAS. Kentucky Chief of peds neurology Dr. Vivay Puri in Louisville KY - saw her and told us about PANDAS and invited us back the next day to be seen by Dr. Mink, a Tourette's specialist from NYC, who is NOT a pandas believer (see entire post in original thread) Maine Dr. Catherine Lockwood in Richmond, Maine. Though she knows little about PANDAS, was willing to and try the saving Sammy dose of Augmentin XR. Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?) Maryland Dr. Beth Latimer, neurologist in Maryland has been very helpful, compassionate, knowledgeable. 6420 Rockledge Dr # 2500 Bethesda, MD 20817-7837 Phone: (301) 530-9200 Dr. Azim Baig of South River Peds south of Annapolis. (give proph abx with aso titers) Massachusetts Dr. Dan Geller at Mass General 617-724-6300 (augmentin only?) Dr. Robert Fuhlbrigge in Boston, MA Assistant Professor of Pediatrics(pediatric rheumatologist at Children's Hospital Boston) Dr. Raif Geha in Boston (pediatric immunologist at Children's Hospital Boston; specializes in immunodeficiency) Childrens Hospital Boston Rheumatology /Fegan 6 300 Longwood Ave. Boston ,Ma 02115 0ffice # 617 355-5727 page 617 355-6369 email robert firstname.lastname@example.org Elizabeth TePas, MD (pediatric immunologist) Mass General Hospital for Children/Newton-Wellesley Hospital.v Nebraska Dr. Stacy Houston, Doctors of Children, Lincoln, Nebraska Dr. Koybashi, Immunologist, Omaha, Nebraska Dr. James Nelson, Neurologist, - very helpful, diagnosed her clinically, willing to work with antibiotics and IVIG as necessary. Used to be in NC but recently moved to NE. New Jersey Dr. Rosario Triffileti, pediatric neurologist, Ramsey, NJ http://pandas.yuku.com Dr. Jyonouchi 90 Bergen Street Newark, NJ 973 972 5779 she is an allergist/immunologist Works out of UNJMD (University of Medicine and Dentistry of New Jersey) (Macecsko doc) New York Dr. Kenneth Bock in Rhinebeck, NY (specializes in integrative medicine and also a DAN! doctor) Dr. Nira Goldstein at Downstate Medical Center in Brooklyn, NY is an ENT She has seen several PANDAS patients in her practice. She generally refers them to Max April at Weill Cornell Hospital in New York City. Dr. April appears on TV periodically in the area as an expert. Dr. Trifilletti also mention Dr. April as a good doctor in this area. Fred Bomback MD in Hartsdale, NY Treaded with Cefdinir and a vitamin combo of Cholene/Isolene North Carolina James, Lee, MD Piedmont Neuropsychiatry - 1 hr 30 min from Charlotte, NC, does not bill insurance but is an important resources in the area http://www.piedmontneuropsychiatry.com/ Dr. Mauve O'Conner - Carolina Asthma & Allergy - Charlotte NC (also office in Concord) - she is very interested and curious. Willing to review all medical records and work with other doctors in a team approach (works with Dr. Corbier) Dr Branner - Pediatric GI specialist - great guy, PANDAS believer, really did good work to figure out stomach issues. Did not dismiss immediately as anxiety. Found Peptic Ulcers - Charlotte NC - Presby Pediatric GI. Dr. DeeDee Russell - not a PANDAS person, but excellent with ERP therapy for kids and helping with anxiety. Cornelius NC Dr. Pat Gammons - all the doctors at Duke, in PCAAD. Again, not really PANDAS believer - but not skeptic either. Just wants to help on the therapy side, and did amazingly well working on the OCD. Northeast Pediatric Neurology in Concord... both neurologists treat PANDAS (Dr. Corbier and ??) Very busy office, takes a long time to get an appt and the appointments tend to run late. Dr. Corbier really knows what he is doing and he gets that light bulb look and has ideas of what to look for. Not big on treatment and with low titers he dismissed the idea at first. Chris Jenny PA - Dan! Doctor in Charlotte, PANDAS knowledge, is aware of Dr. Cunningham's tests and research. Will treat with antibiotics but not agressively. Helpful as backup for issues related to diet, supplements, yeast, behavior..... Eliana Perrin, MD Professor of Pediatricis Chapell Hill (did some of the origional work with Swedo) - NOT SEEING PATIENTS AT THIS TIME. Ohio Dr. Nevada Reed at Kids Link in Akron OH treats PANDAS She does not accept insurance. http://www.kidslinkohio.com/family/index.shtml Glenn J. Trippe, M.D., F.A.A.P. "very interested in learning and treating this.. ....used longterm antibiotic without me even mentioning it.. He is the one who introduced me to PANDAS and told me what it was.. and who is treating my DD at this time." New Beginnings Pediatrics Norwalk, Ohio http://nbpeds.com/glenn-trippe Pennsylvania Second hand info about the following doctor, he does do IVIG. He is in Philadelphia. Agustin Legido St. Christopher's Pediatric Associates Chief, Section of Child Neurology Professor of Pediatrics and Neurology Dept of Pediatrics Erie Avenue at Front Street 3rd Floor ACP, Suite 3314 Philadelphia, PA 19134 Tel: 215-427-5470 Also in Reading: Only 1 day a month Reading Hospital Medical Center Deptartment 132 PO Box 16052 Reading, PA 19612-6052 610-988-9447 Dr. Josephine Elia at Children’s Hospital Will discuss the course of the illness; conservative with antibiotics or pex/ivig . Tamar Chansky, Ph.D. is the Founder and Director of the Children’s Center for OCD and Anxiety Philadelphia, PA – website: www.worrywisekids.org Liberal with antibiotics and open to discussing. Tennessee Dr. Daniel B. Kalb 615-791-9784 csfmed.net Texas Fort Worth, TX Dr. Mark Mazade, Pediatric Infectious Disease Specialist with Cook Children's Medical Center 800 7th Ave Fort Worth, TX 76104-2704 - (682) 885-1485 Seems gentle and kind, very pleased with him. Arlington, TX Dr. Wilfred Raine, Pediatrician in the Cook Children's group. 848 W. Mitchell St. Arlington, TX 76013 - (817)-795-8498 Dr. Raine is friendly, compassionate, supportive and was the only (of many) pediatricians in Arlington who took me seriously. Virginia Dr. Susan Perlmutter in Northern Virginia is knowledgeable, very helpful in diagnosis, limited medical intervention available. Dr. Julie Lewis, The Ross Center for Anxiety, psychologist - Very helpful in devising strategies and helpful with the school as well. Pediatrician, Dr. Julie Fortner - Someone who will LISTEN! Staff (receptionist and nurse) extremely sympathetic, warm and friendly. http://www.richmondpediatriccenter.com/def...t=1&Child=1 Pediatric Infectious Disease Specialist, Dr. William C. Koch http://www.vcuchildrens.org/?id=716&sid=4 Washington Dr. Tracie O'Neill, Pediatric Associates in Issaquah, Washington - She is fantastic! Dr Cynthia Keller and Dr Sharon Hemplar at Redmond Pediatrics in Redmond Nr Seattle, Washington is treating PANDAS Patients with Antiobiotics, Steroids IVIG and PEX Dr. Kim Kacoroski, ND is treating homeopathically in Kirkland, WA Dr. Judyth Reichenberg- Ullman and Robert Ullman in Edmonds, WA have cured cases homeopathically Dr Niran Al-Agba at Silverdale Pediatrics – Learning about PANDAS and willing to treat with long term antibiotics and treating quickly w/o waiting for positive strep test Silverdale, WA 360-692-8588 Psychiatrist, Robert Reichler, at the Pacific Institute for Mental Health in Edmonds, WA. We had a consult with him and he was very helpful. He has seen a number of PANDAS cases and believes that PANDAS is real. United Kingdom London Gavin Giovannoni, MBBCh, PhD^ Queen Mary University London, Neuroimmunology Unit, Neuroscience Centre, Institute of Cell and Molecular Science, Barts and The London School of Medicine and Dentistry, London, United Kingdom e-mail: email@example.com <mailto:firstname.lastname@example.org> Isobel.Heyman@iop.kcl.ac.uk Dr. Isobel Heyman Edited November 18, 2011 by Suzan Link to comment Share on other sites More sharing options...
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