PANDAS and tics

[courtneyjolie]

I was told that children with PANDAS have tics or would develop them quickly. I was wondering if this was accurate? My son doesn't have tics

[sf_mom]

Sometimes its only OCD.

[thereishope]

My son never had tics.

 

Here's thread you'd might like to read. A lot of people responded whether their child had tics, OCD, or both.

 

http://www.latitudes.org/forums/index.php?...ic=5220&hl=

[momaine]

I was told that children with PANDAS have tics or would develop them quickly. I was wondering if this was accurate? My son doesn't have tics

My dd has only ocd symptoms for 3 years but then developed a tic this fall during a terrible exacerbation of symptoms.

Angela

[ajcire]

What about not seeing tics or ocd? I mentioned in another post being concerned about my dd now (currently not diagnosed with pandas). My concerns are behaviorial... more defiant than normal, very emotional, reacting strongly to things she didn't used to, saying she doesn't feel well constantly (need to figure out what the heck is wrong with her if she is really not feeling well all the time).... she gets strep frequently with classic symptoms. I would never have thought of pandas if I wasn't dealing with it with my son and feeling like I am just seeing it in her. Without an obvious presentation of ocd or tics should I just stop my worrying on this?

[courtneyjolie]

I agree. I feel like everything with my son's case points to PANDAS, but now I'm worried that he will start having tics next. I'm calling his doctor this morning to have a aso titer, and throat culture done. I'm also calling a child neurologist to set up an appointment.

[kcdc3]

My dd only had OCD for 3 years, but developed tics after her last strep in July of this year.

[thereishope]

I am a strong advocate of following your mommy instinct. As you read through posts on this forum, you will see that many parents , in hindsight, realize or wonder if their child actually exhibited PANDAS prior to the explosive, sudden onset exacerbation that caused the red flags to go up. That perhaps their child's real first PANDAS manifestation was just excessive sepationanxiety, emotional liability, frequent urination, etc. If you wonder it, follow your gut and search out an answer. Perhaps IF she does have PANDAS you will catch it early and you won't have such a rough road ahead of you. Perhaps subsequent,much worse exacerbations can be avoided.

 

 

 

What about not seeing tics or ocd? I mentioned in another post being concerned about my dd now (currently not diagnosed with pandas). My concerns are behaviorial... more defiant than normal, very emotional, reacting strongly to things she didn't used to, saying she doesn't feel well constantly (need to figure out what the heck is wrong with her if she is really not feeling well all the time).... she gets strep frequently with classic symptoms. I would never have thought of pandas if I wasn't dealing with it with my son and feeling like I am just seeing it in her. Without an obvious presentation of ocd or tics should I just stop my worrying on this?

[ajcire]

Thanks Vickie. I am so torn on all this. I am afraid I am starting to look like that crazy mom. If or when Dr. Cunningham starts accepting more samples I might ask her about including my daughter in the study. The last few days she has been saying she doesn't want to go on the bus. No good reason and she loves the bus. She doesn't really fight but says she doesn't want to before it comes. Today she said she doesn't want to go to school. She loves school. She's no in hysterics over it or anything and I know she will go but just the fact that she just said to me and when I asked why she said, "I don't know" has me a bit on edge. I know I shoudn't wish it on us but I almost wish a real physical sign would just jump out. If I saw ocd now or tic like behavior I would know what direction to go in without feeling crazy.

 

 

 

 

 

I am a strong advocate of following your mommy instinct. As you read through posts on this forum, you will see that many parents , in hindsight, realize or wonder if their child actually exhibited PANDAS prior to the explosive, sudden onset exacerbation that caused the red flags to go up. That perhaps their child's real first PANDAS manifestation was just excessive sepationanxiety, emotional liability, frequent urination, etc. If you wonder it, follow your gut and search out an answer. Perhaps IF she does have PANDAS you will catch it early and you won't have such a rough road ahead of you. Perhaps subsequent,much worse exacerbations can be avoided.