Jump to content
ACN Latitudes Forums
fcefxer

Augmentin Not Working?

Recommended Posts

Just throwing this out there. When we were first toying with the idea that my daughter had PANDAS, we tried penicillin ( my daughter is allergic to mold) It made her tics much worse, but had no visible other complications as in rashes or difficulty breathing. She has been on KEFLEX now for 7 weeks and is syptom free for the first time in TWELVE years. That's right TWELVE. It got me to thinking that I';m hearing from some mom's trying penicillin or Augmentin that it didn't work on their child. Perhaps it's for the same reason as my daughter. Each mom I've spoken to that their child was slower to respond, or started to, then it stopped working, also had active black mold growing in their house. I can't stress enough how strongly mold effects people neurologically, and can cause a person to be sensitive to penicillin.

 

I had written to Dr. Swedo and she said that in her clinic, she treats with penicillin or cephalosporins (spelling?) which keflex is. Maybe just trying a different antibiotic that is not made from mold could be the difference. It certainly was for us. Penicillin made her very, very, very tic-y and made her OCD much worse.

 

Nancy

Share this post


Link to post
Share on other sites
Just throwing this out there. When we were first toying with the idea that my daughter had PANDAS, we tried penicillin ( my daughter is allergic to mold) It made her tics much worse, but had no visible other complications as in rashes or difficulty breathing. She has been on KEFLEX now for 7 weeks and is syptom free for the first time in TWELVE years. That's right TWELVE. It got me to thinking that I';m hearing from some mom's trying penicillin or Augmentin that it didn't work on their child. Perhaps it's for the same reason as my daughter. Each mom I've spoken to that their child was slower to respond, or started to, then it stopped working, also had active black mold growing in their house. I can't stress enough how strongly mold effects people neurologically, and can cause a person to be sensitive to penicillin.

 

I had written to Dr. Swedo and she said that in her clinic, she treats with penicillin or cephalosporins (spelling?) which keflex is. Maybe just trying a different antibiotic that is not made from mold could be the difference. It certainly was for us. Penicillin made her very, very, very tic-y and made her OCD much worse.

 

Nancy

 

Yes, it's definitely time to move on for my son. Zithromax is not doing anything for him. Penicillin was tried a year ago to no avail. I think Keflex may be the choice now. Did symptoms go away slowly? Was it still bad for a few days or did you see immediate response? We did high dosage of Zith and nothing doing. It may be due to that Northeastern strain of strep rearing its ugly head.

Share this post


Link to post
Share on other sites
Just throwing this out there. When we were first toying with the idea that my daughter had PANDAS, we tried penicillin ( my daughter is allergic to mold) It made her tics much worse, but had no visible other complications as in rashes or difficulty breathing. She has been on KEFLEX now for 7 weeks and is syptom free for the first time in TWELVE years. That's right TWELVE. It got me to thinking that I';m hearing from some mom's trying penicillin or Augmentin that it didn't work on their child. Perhaps it's for the same reason as my daughter. Each mom I've spoken to that their child was slower to respond, or started to, then it stopped working, also had active black mold growing in their house. I can't stress enough how strongly mold effects people neurologically, and can cause a person to be sensitive to penicillin.

 

I had written to Dr. Swedo and she said that in her clinic, she treats with penicillin or cephalosporins (spelling?) which keflex is. Maybe just trying a different antibiotic that is not made from mold could be the difference. It certainly was for us. Penicillin made her very, very, very tic-y and made her OCD much worse.

 

Nancy

 

Yes, it's definitely time to move on for my son. Zithromax is not doing anything for him. Penicillin was tried a year ago to no avail. I think Keflex may be the choice now. Did symptoms go away slowly? Was it still bad for a few days or did you see immediate response? We did high dosage of Zith and nothing doing. It may be due to that Northeastern strain of strep rearing its ugly head.

 

fuel,

how long is your ds on zith now?

Share this post


Link to post
Share on other sites

Ds went on zith several times last year and it really didn't do a thing. We tried boosting it recently because his titers were elevated for five days and that ended last Saturday. Now it's Tuesday. He's horrible. I'm ready to send him to behavioral boarding school. Since IVIG in October, which appears not to have done a thing, he was on Zith twice a week. As I said, the boost came last week. But I'm tired of waiting.

Instead I am thinking Keflex and tonsils out now, the latter per Dr. T's suggestion. I just think he has had this problem for seven years or so and Zithromax does not affect anything here. I know it's easiest on the stomach but I'd rather see him get a little diarrhea a couple days and get him well long term if that's what it takes. It's worth trying, I think.

 

michael

Share this post


Link to post
Share on other sites

It was a slow progression. It took about 5 weeks to feel we were on our way to beating this. It's about 7 weeks now on 2000 mgs of keflex a day. She is a new person. She tells me, "Not 100% but MUCH, MUCH better."

 

Nancy

 

Just throwing this out there. When we were first toying with the idea that my daughter had PANDAS, we tried penicillin ( my daughter is allergic to mold) It made her tics much worse, but had no visible other complications as in rashes or difficulty breathing. She has been on KEFLEX now for 7 weeks and is syptom free for the first time in TWELVE years. That's right TWELVE. It got me to thinking that I';m hearing from some mom's trying penicillin or Augmentin that it didn't work on their child. Perhaps it's for the same reason as my daughter. Each mom I've spoken to that their child was slower to respond, or started to, then it stopped working, also had active black mold growing in their house. I can't stress enough how strongly mold effects people neurologically, and can cause a person to be sensitive to penicillin.

 

I had written to Dr. Swedo and she said that in her clinic, she treats with penicillin or cephalosporins (spelling?) which keflex is. Maybe just trying a different antibiotic that is not made from mold could be the difference. It certainly was for us. Penicillin made her very, very, very tic-y and made her OCD much worse.

 

Nancy

 

Yes, it's definitely time to move on for my son. Zithromax is not doing anything for him. Penicillin was tried a year ago to no avail. I think Keflex may be the choice now. Did symptoms go away slowly? Was it still bad for a few days or did you see immediate response? We did high dosage of Zith and nothing doing. It may be due to that Northeastern strain of strep rearing its ugly head.

Share this post


Link to post
Share on other sites
Ds went on zith several times last year and it really didn't do a thing. We tried boosting it recently because his titers were elevated for five days and that ended last Saturday. Now it's Tuesday. He's horrible. I'm ready to send him to behavioral boarding school. Since IVIG in October, which appears not to have done a thing, he was on Zith twice a week. As I said, the boost came last week. But I'm tired of waiting.

Instead I am thinking Keflex and tonsils out now, the latter per Dr. T's suggestion. I just think he has had this problem for seven years or so and Zithromax does not affect anything here. I know it's easiest on the stomach but I'd rather see him get a little diarrhea a couple days and get him well long term if that's what it takes. It's worth trying, I think.

 

michael

Share this post


Link to post
Share on other sites

Speaking of mold, I have been meaning to ask on here if any of your children have a problem with mold in their toilet. If we don't clean my dd's toilet every couple of days it gets a black colored mold in it. My dh says that it is because she won't flush it (ocd symptom) but my son never remembers to flush his and it never gets mold in it. Do you think this could be some kind of bacteria she she has and it could be causing her symptoms. I have only noticed it when her symptoms are bad. None of the other toilets in the house get mold in them.

 

It might make sense about the penicillin, because it works for a bit each time we try another one but they stop working after a couple of weeks. Maybe I should ask for Keflex next.

 

Melanie

Share this post


Link to post
Share on other sites

I don't know the answer to this but, shouldn't the Azith be given daily for months to see a positive change? I know when the doctor first put her on Keflex he did 2 weeks on, two weeks off WRONG!!!!!!! It has to be consistent. That way didn't do anything to help.

 

Nancy

 

Ds went on zith several times last year and it really didn't do a thing. We tried boosting it recently because his titers were elevated for five days and that ended last Saturday. Now it's Tuesday. He's horrible. I'm ready to send him to behavioral boarding school. Since IVIG in October, which appears not to have done a thing, he was on Zith twice a week. As I said, the boost came last week. But I'm tired of waiting.

Instead I am thinking Keflex and tonsils out now, the latter per Dr. T's suggestion. I just think he has had this problem for seven years or so and Zithromax does not affect anything here. I know it's easiest on the stomach but I'd rather see him get a little diarrhea a couple days and get him well long term if that's what it takes. It's worth trying, I think.

 

michael

Share this post


Link to post
Share on other sites

Penicillin is made from mold and Augmentin is made of penicillin. Also if you have mold on cellar or bathroom walls, it means that there is a ton behind that wall. Also dirt basement flloors, or sometimes under the wood floor that's placed on a cement slab. You can get a mold spore test at Home Depot for $10-12. Follow direction s an then mail the completed test to the company for results (but if you see fuzz in the test after a few days...bingo we have mold!) Mold in the air is really bad for people neurologically and can make you really sensitive to it, as in penicillin.

 

So yes if you are allergic to mold Augmenin can make you worse. We take Keflex 2000 mgs a day for my 130 pound son and 150 pound daughter.

 

Nancy

 

So, does augmentin have mold in it?

 

elizabeth

Share this post


Link to post
Share on other sites
I don't know the answer to this but, shouldn't the Azith be given daily for months to see a positive change? I know when the doctor first put her on Keflex he did 2 weeks on, two weeks off WRONG!!!!!!! It has to be consistent. That way didn't do anything to help.

 

Nancy

 

Ds went on zith several times last year and it really didn't do a thing. We tried boosting it recently because his titers were elevated for five days and that ended last Saturday. Now it's Tuesday. He's horrible. I'm ready to send him to behavioral boarding school. Since IVIG in October, which appears not to have done a thing, he was on Zith twice a week. As I said, the boost came last week. But I'm tired of waiting.

Instead I am thinking Keflex and tonsils out now, the latter per Dr. T's suggestion. I just think he has had this problem for seven years or so and Zithromax does not affect anything here. I know it's easiest on the stomach but I'd rather see him get a little diarrhea a couple days and get him well long term if that's what it takes. It's worth trying, I think.

 

michael

 

I agree...I don't think you would be able to tell much from only 5 days of full-strength Azith. I would give it at least a month before you say it's not doing anything.

Share this post


Link to post
Share on other sites

Sounds like a plumbing problem. Important to use bleach to destroy it right away.

 

Nancy

 

Speaking of mold, I have been meaning to ask on here if any of your children have a problem with mold in their toilet. If we don't clean my dd's toilet every couple of days it gets a black colored mold in it. My dh says that it is because she won't flush it (ocd symptom) but my son never remembers to flush his and it never gets mold in it. Do you think this could be some kind of bacteria she she has and it could be causing her symptoms. I have only noticed it when her symptoms are bad. None of the other toilets in the house get mold in them.

 

It might make sense about the penicillin, because it works for a bit each time we try another one but they stop working after a couple of weeks. Maybe I should ask for Keflex next.

 

Melanie

Share this post


Link to post
Share on other sites

I know Keflex is not made from mold, and it worked great for us, so it gets my vote.

 

Wow Nancy:

 

My son is highly allergic to mold!!! He has been on augmentin for 3 1/2 months. I am going to try to change it today. So, as a prophylactic antibiotic to prevent strep, do you think zithromycin or keflex would work better?

 

Elizabeth

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now



  • Announcements

    • Administrator



      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator



      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic
×