bubbasmom Posted October 23, 2009 Report Share Posted October 23, 2009 Anyone attributing migraines to PANDAS? or is that a whole other issue you think? I just wonder with the 'swelling' in the brain if it would be. Link to comment Share on other sites More sharing options...
Worried_Dad Posted October 23, 2009 Report Share Posted October 23, 2009 When our son first got sick, he had almost constant, crippling headaches. I always attributed that to the brain inflammation, like you suggested. Link to comment Share on other sites More sharing options...
mama2alex Posted October 23, 2009 Report Share Posted October 23, 2009 No migraines, but he'd been having unexplained headaches off and on for a long time before he was diagnosed. Link to comment Share on other sites More sharing options...
Iowamom Posted October 24, 2009 Report Share Posted October 24, 2009 No migraines, but he'd been having unexplained headaches off and on for a long time before he was diagnosed. Our 10 1/2 yo son started having migraines at 3 1/2. These continued for several years. He is of a subset of PANDAS kids that Dr. K believes gets it very young and it's missed. In hindsight, and with med records going back to his birth, we truly believe something happened around 15-18mo. Because of all the tummy issues he had, I am inclined to believe these migraines were strep related. Dawn Link to comment Share on other sites More sharing options...
mom md Posted October 24, 2009 Report Share Posted October 24, 2009 We had headaches also. My guess it was part of the encephalitis. Link to comment Share on other sites More sharing options...
EAMom Posted October 24, 2009 Report Share Posted October 24, 2009 My dd had ocular migraines and regular headaches (migraines?) as well. Link to comment Share on other sites More sharing options...
PKM Posted October 26, 2009 Report Share Posted October 26, 2009 My son began having migraines 3 years ago. I actually think it was the first neurological symptom resulting from repeated untreated strep infections. These migraines were happening 5 or 6 times a week. He still gets migraines occasionally now - but not like before - maybe only once a week or so. Anyone attributing migraines to PANDAS? or is that a whole other issue you think? I just wonder with the 'swelling' in the brain if it would be. Link to comment Share on other sites More sharing options...
feedjke Posted October 27, 2009 Report Share Posted October 27, 2009 My son gets headaches (not quite migraines) I get migraines though so he could get them from me also. Link to comment Share on other sites More sharing options...
cwmom Posted October 27, 2009 Report Share Posted October 27, 2009 My son was diagnosed with migraines at age 5 ( followed by a headache specialist) the headaches waxed and waned. Now I am wondering if he had strep during any of those exacerbations-- still gets occasional headache but not nearly as bad. Link to comment Share on other sites More sharing options...
Stephanie2 Posted October 27, 2009 Report Share Posted October 27, 2009 This is so interesting to me b/c something strange happened 5 days after my son's current pandas exacerbation started. I got the migraine of my life (I do not have a hx of migraines, or even headaches for that matter). At first I thought that it was probably an extreme stress response to what was happening to my son. Then the next day I developed a fever, the day after that I vomitted twice and developed a sore throat. The headache was so bad I couldn't get out of bed for 4 days and even my eyes hurt when I moved them (is that an ocular migraine)? Anyway, I did not go to the doctor (so busy trying ot secure meds for my son) and the sore throat came and went for a couple months until I took 2 rounds of zithromax. I am actually being cultured tomorrow with my whole family b/c we can't seem to lower my son's zithromax, he goes backwards. We are thinking that someone in the house is reexposing him (probably me). BTW, I also went into a major depression that week (is there any wonder?) but I am now wondering if I had brain inflammation that week from the strep exposure and the inflammation caused the depression...? Anyone have any feedback about that? Stephanie My son was diagnosed with migraines at age 5 ( followed by a headache specialist) the headaches waxed and waned.Now I am wondering if he had strep during any of those exacerbations-- still gets occasional headache but not nearly as bad. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now