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DC children's hospital neurology?


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Has anyone found success with DC Children's hospital neurology?

 

My son is doing well so I'm not so much looking for practical help but think it is probably a good idea to have him seen by a neurologist - and this has been suggested by other drs we have consulted - in general terms, not specific to him. i'm trying to do this under insurance and have latimer as a last resort. our roads were leading to Harvey Singer but I am avoiding that. i am surprised at how JHU pervades so many practices and theories in this area. in another situation, that would be fabulous - however not with this!

 

thanks!

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I do agree that Dr. Singer would be a big waste of time.

 

However, I do wonder what would happen if a big barrage of severe PANDAS patients (ones that have already improved on abs/ivig etc...and not just the ones with tics that he can claim tourettes) started seeing him...if he would finally have an "aha" moment.

 

Well, probably not.

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smarty jones- I really don't know about Children's. I did see an infectious disease doc there, he did not believe in the "pandas theory". I said that is ok- I am not here to debate that, but to learn about strep. He then read to me from the book (whatever that book doctors have- that by the was is bout 3 yrs old and needs to be updated). I could have done that myself. So, I really wouldn't bother with them.

 

I know Dr L is expensive (well actually the going rate for specialists). The first visit is the most, subsequent visits are less than half that price. My insurance paid me quite a bit out of network, and her office submits. Unfortunately, many/most private practice specialists (heck even peds) don't take insurance in the immediate DC area.

 

If you have the option, i would establish a relationship with latimer. The co pays for useless docs add up fast. And Georgetown takes insurance- so if you need to go for any procedures- you are covered there.

 

I am still looking for an immunologist. So let me know if you find one of those...

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