ajcire Posted September 23, 2009 Report Share Posted September 23, 2009 I was just realizing that the last 2 days ds was actually not clearing his throat as much and his behavior was much more tolerable. I just found out though yesterday he was positive for strep... and I just started the antibotic this morning. The dr. wants me to let him know next week before the 10 day run what changes I see.. he said he might want to continue him without stop on a different antibotic depending... I am guessing if I see a positive change he will want to continue... but he's not at his worst at the moment so not sure I will be able to tell much by next week. When you have put your kids on the 10 day course for active strep.... do you notice a noticeable change right away? Link to comment Share on other sites More sharing options...
thereishope Posted September 23, 2009 Report Share Posted September 23, 2009 The first time, I saw improvement within the first 5 days. The second time it took longer. To be honest, I cannot remember how fast it took to see improvement the third time. The first time he got sick, he had his behavior changes for a few weeks before we found out he had strep. Pre-antibiotics , I did have some moments of hope that it was going to go away on its own. Like I was able to limit his excessive hand washing. However, those glimpses of hope would get erased by more meltdowns and more problems. Pretty soon, those good times were completely gone. If anything, those moments of hope made things worse because it bought him more time before the doctor saw him. It wasn't until he was finally put on antibiotics for strep did I see a more consistent upswing of symptoms. But, let me add, it still did take months for him to fully recover. Link to comment Share on other sites More sharing options...
ShaesMom Posted September 23, 2009 Report Share Posted September 23, 2009 The first time, I saw improvement within the first 5 days. The second time it took longer. To be honest, I cannot remember how fast it took to see improvement the third time. The first time he got sick, he had his behavior changes for a few weeks before we found out he had strep. Pre-antibiotics , I did have some moments of hope that it was going to go away on its own. Like I was able to limit his excessive hand washing. However, those glimpses of hope would get erased by more meltdowns and more problems. Pretty soon, those good times were completely gone. If anything, those moments of hope made things worse because it bought him more time before the doctor saw him. It wasn't until he was finally put on antibiotics for strep did I see a more consistent upswing of symptoms. But, let me add, it still did take months for him to fully recover. We saw immediate improvement within hours of starting the abx. Anxiety level decreased majorly Link to comment Share on other sites More sharing options...
sf_mom Posted September 23, 2009 Report Share Posted September 23, 2009 Erica, In one of the Swedo talks posted on-line she says something about noticing the increase in OCD/Tics 3 to 9 days prior to full blown strep. After our son got sick, we noticed he was getting better on his own 'no antibiotics', but his titers were positive so we treated with a 5 day course of antibiotics and he improved even further, within 48 hours of being off antibiotics his symptoms started to increase so we secured another round of antibiotics, symptoms immediately improved again. Finally, after securing a third round of antibiotics and being on them for 35 days straight he was back to 95%. We are now four days post IVIG treatment with Dr. K and expect him to be on antibiotics for the next year to make sure his immune system has a chance to recover. I would expect for you to see similar improvements or declines if he is not treated aggressively. I would try to secure antibiotics for as long as possible (minimally, until the cough is entirely GONE). OUR SON is taking 250 m.g. Azthromycin daily, in the morning and he is 42 pounds. Link to comment Share on other sites More sharing options...
thereishope Posted September 23, 2009 Report Share Posted September 23, 2009 When asking this question, it also might be important to know what antibiotics each child was on. That might effect how fast or slow they started to some some improvement. My son was on amoxicillan. Link to comment Share on other sites More sharing options...
P_Mom Posted September 23, 2009 Report Share Posted September 23, 2009 SF Mom, Did you request Azith, or, did Dr. K put him on it himself?? Curious because he always spoke "negatively" about Azith. (atleast to me) Perhaps he has changed him mind?? Kelly Link to comment Share on other sites More sharing options...
sf_mom Posted September 23, 2009 Report Share Posted September 23, 2009 Kelly, my son has a reaction to amoxicillin so he put him on the azithromycin. Didn't say anything negative about one antibiotic verses the other to me. Link to comment Share on other sites More sharing options...
ajcire Posted September 24, 2009 Author Report Share Posted September 24, 2009 Thanks everyone... for now my ds is on amoxicillian for the 10 day dose... as is my non pandas daughter who has classic strep symptoms (sore throat). Link to comment Share on other sites More sharing options...
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