pmoreno Posted September 2, 2009 Report Share Posted September 2, 2009 Hello all, Haven't posted for quite some time - we were out of the country most of the summer. For those who don't know us - Gaby was 7 1/2 when she had a virus (turned into an initial herpes simplex outbreak which then repeated itself almost every month thereafter).She developed typical PANDAS like symptoms of OCD, tics, sleep disorder, extreme anxiety, paranoia, visual hallucinations, decline in handwriting, math skills, reading, social skills, ability to dress herself, ate with fingers instead of fork (just to name a few). Her behavior had improved the summer before last for a few months, but with another viral outbreak, started all over again. We had IVIG last October which got rid of the tics, but all other behaviors hung on with January, February & March being the worst months. In April we started her on Kefir and she is still drinking it daily. It has now been over 5 months without a herpes outbreak (unbelievable). Last month I stopped all the vitamins & supplements that we had been doing for at least a year. The only other thing I do besides the kefir (since it has really boosted her immune system) is that if I detect the slightest sniffle I give a teaspoon of vitamin C powder diluted in small amt. of OJ (equivalent to about 5,000 mg) & by the next day she is usually fine (sometimes I have to give a second or third dose, but rarely). If she complains about a stomach ache or I suspect any kind of infection, I give 3 or 4 drops of oregano oil mixed with a tablespoon of any other oil (fish oil or olive oil - just to keep the oil of oregano from burning the throat - its strong). Gaby is about 98% herself now. No obsessive thoughts or questions. The only thing that remains is that she still gets a little more upset when provoked by her twin than she used to, but it's manageable. Since I can't cite any research studies that prove this - I can only say that since Gaby started drinking the goat milk kefir 5 months ago, she has not been sick and with that her behavior has gotten better & better. I can't say that she won't ever have this again - because who knows? I do know that this is the longest that she's gone since starting the symptoms of being close to her "normal" self. I tend to think that if the good microflora in the intestines are plentiful, this keeps the immune system functioning well - might help to ward off strep or viruses. Anyway, we're on a roll so let's keep our fingers crossed. Pat Link to comment Share on other sites More sharing options...
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