Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
Pudgeo

Sorry I was gone for so long! Son had relapse!

Recommended Posts

Hello, Sorry I was gone for so long, I definitely need to get back here more! My son had a relapse of symptoms. He became ill with a fever in June and he had a definite relapse. He is spacey again, pacing around, moody. Luckily not as bad as when he first started with PANDAS in Jan 07. I restarted the azith 2 months ago but so far no change. I would say overall he has never completely recovered, even when he was doing better, there was still behaviors and things about him that were definitely not there before he had PANDAS. So I feel like now we are starting over ...

I wish I had better news! I will be checking in and reading posts now! Sarah

Share this post


Link to post
Share on other sites

Yes, My son had 3 IVIG...alot of the "old timers" here know me.

I am also restarting doing the HBOT again...back to square one!

Thanks Buster for all the research you do!!

Sarah

Share this post


Link to post
Share on other sites

How helpful was HBOT? I am curious because my son's DAN doctor has said that it reduces inflammation and she has talked about trying it for him some time in the near future.

 

Ellen

 

 

Yes, My son had 3 IVIG...alot of the "old timers" here know me.

I am also restarting doing the HBOT again...back to square one!

Thanks Buster for all the research you do!!

Sarah

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...