Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
melanie

IVIG

Recommended Posts

Hi

We went to our old neurologist and within 10 minutes he asked me if I ever heard of PANDAS I stated to cry. I am in the process of getting all of his medicalrecords together to show corralation beteween illness and tics /behavior I think he is going to do the iVIG well I think I hope I dont know many of you know my story cross your fingers and hope for the best I will keep in touch I dont want to jinx anything Melanie

Share this post


Link to post
Share on other sites

Hi Melanie...I know your son is older and I wonder if PEX would actually work better for him? I know NancyD's dd did have IVIG in her dd who was a bit older (12). I understand something changes at puberty, which makes these kids less responsive to IVIG?

 

MomMD's son (not older, but severe symptoms) had PEX so maybe she will chime in as well.

 

Is the neurologist going to try a steroid burst first?

Share this post


Link to post
Share on other sites
Hi Melanie...I know your son is older and I wonder if PEX would actually work better for him? I know NancyD's dd did have IVIG in her dd who was a bit older (12). I understand something changes at puberty, which makes these kids less responsive to IVIG?

 

MomMD's son (not older, but severe symptoms) had PEX so maybe she will chime in as well.

 

Is the neurologist going to try a steroid burst first?

Whats PEX???

Sarah

Share this post


Link to post
Share on other sites
Whats PEX???

Sarah

 

PEX = Plasma exchange / plasmapheresis.

 

I still have to get his medical records Ill know more this week I dnt know his plan He seems set on the IVIG Ill keep intouch

 

Melanie

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...