Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

colleenrn

strep hiding out somewhere

Recommended Posts

Three of my children are on Zithromax prophylactically, my youngest is not. They were heavily exposed to strep for a whole week, about a month ago and had a flareup of PANDAS symptoms.

 

I took my youngest (not on antibiotics) for an upper respiratory culture last week. My NP said his rash was unmistakable for a scarlatinaform rash (he has had many rashes exactly like this one before while having PANDAS symptoms) and agreed to treat him even though the rapid was negative. Just found out that the upper respiratory culture was negative for strep. I KNOW he has or had strep. I am wondering where people have isolated the strep to be when you know your child has it, but cultures are negative. I know where it could be hiding out (sinuses, adenoids, gut, perianal), BUT where have you found it in your child?

Thanks so much!

Colleen

Share this post


Link to post
Share on other sites

His knees are always skinned up and he reopens the wounds a lot by falling on the driveway. Other than his knees, no cuts or scratches that I can see.

Colleen

Share this post


Link to post
Share on other sites

How do you tell/ what happens if strep is hiding out in the gut? Older non pandas daughter had strep in the winter- we had to cut short her antibiotic treatment because of an allergic reaction. She has not been feeling right since (done the whole GI route), but the doctors can't find anything. Could she have strep in the gut? (could this be aggravating pandas dd)

Share this post


Link to post
Share on other sites

From what I understand, strep can hide just about anywhere in the body. Here's a link to an interesting article:

http://www.adefa.com.br/portal/modules/art...print.php?id=67

 

I don't know who authored the article -- it looks like it's linked to an autism organization in Brazil.

 

I always thought that perhaps my daughter's strep was in her sinuses. She has never had a strep throat infection in her life but she does get sinus infections. This article says "Streptococcal infection in the gut can serve as a reservoir to reinfect the sinuses." My daughter has had a lot of gut issues over the years -- in fact, she had chronic colitis.

 

This article goes on to say, "Xylitol nasal spray will help to eliminate nasal strep, reduce ear infections and has been reported to help with leaky gut, most likely by deceasing the flow of streptococci from the sinuses into the gut."

 

If anyone has any insight to this, please comment. I'm going to email our ped. gastro, Tim Buie, and see what he says. Very interesting... Thanks for bringing this up, dcmom.

 

Nancy

 

How do you tell/ what happens if strep is hiding out in the gut? Older non pandas daughter had strep in the winter- we had to cut short her antibiotic treatment because of an allergic reaction. She has not been feeling right since (done the whole GI route), but the doctors can't find anything. Could she have strep in the gut? (could this be aggravating pandas dd)

Share this post


Link to post
Share on other sites

As an add-on to my last post, I did a little poking after reading about Xylitol in the article at http://www.adefa.com.br/portal/modules/art...print.php?id=67. It also talks about vitamin C. biotene, and papaya enyzmes as a way to treat strep in the sinuses/gut.

 

That sinus infections can start from the gut is well-known (wish I knew this before!). Xylitol reportedly has antibiotic activity. Vitamin C of course helps with infection. Biotene claims to contain enzymes that break down debris in the mouth so presumably bacteria can't breed there. Papaya enyzmes break down protein (proteolytic enzymes), which are often suggested for inflammation situations.

 

So anything that improves the micro-ecology of the gut should help reduce infection elsewhere.

 

Nancy

 

From what I understand, strep can hide just about anywhere in the body. Here's a link to an interesting article:

http://www.adefa.com.br/portal/modules/art...print.php?id=67

 

I don't know who authored the article -- it looks like it's linked to an autism organization in Brazil.

 

I always thought that perhaps my daughter's strep was in her sinuses. She has never had a strep throat infection in her life but she does get sinus infections. This article says "Streptococcal infection in the gut can serve as a reservoir to reinfect the sinuses." My daughter has had a lot of gut issues over the years -- in fact, she had chronic colitis.

 

This article goes on to say, "Xylitol nasal spray will help to eliminate nasal strep, reduce ear infections and has been reported to help with leaky gut, most likely by deceasing the flow of streptococci from the sinuses into the gut."

 

If anyone has any insight to this, please comment. I'm going to email our ped. gastro, Tim Buie, and see what he says. Very interesting... Thanks for bringing this up, dcmom.

 

Nancy

 

How do you tell/ what happens if strep is hiding out in the gut? Older non pandas daughter had strep in the winter- we had to cut short her antibiotic treatment because of an allergic reaction. She has not been feeling right since (done the whole GI route), but the doctors can't find anything. Could she have strep in the gut? (could this be aggravating pandas dd)

Share this post


Link to post
Share on other sites

My friends daughter (teenager) has had tummy aches for about 6 months. She finally took her in for a GI test and it was postive for strep!! So she has strep bacteria in her gut...Sarah

Share this post


Link to post
Share on other sites
My friends daughter (teenager) has had tummy aches for about 6 months. She finally took her in for a GI test and it was postive for strep!! So she has strep bacteria in her gut...Sarah

 

 

Very interesting. How did they find it there and did she have any symptoms other than a tummy ache--such as constipation??

Share this post


Link to post
Share on other sites
My friends daughter (teenager) has had tummy aches for about 6 months. She finally took her in for a GI test and it was positive for strep!! So she has strep bacteria in her gut...Sarah

 

 

Very interesting. How did they find it there and did she have any symptoms other than a tummy ache--such as constipation??

 

 

Can the blood test on ASO level show strep in the gut?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...