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Doctors we have seen who helped with PANDAS


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I'm looking for doctors in VA who treat PANDAS. Specifically, wondering if anyone has visited with Dr. Stephen Shield in Newport News or Sentara Pediatrics Physicians in Williamsburg (Drs. Gottfried, Graham, and Via). They're listed on the Saving Sammy website list of providers.

 

Does anyone know if these Drs have been helpful? This post is old, but I am in Virginia Beach and would love to find a Dr nearby. Thanks.

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Though she knows little about PANDAS, our family Doctor in Richmond, Maine, Dr. Catherine Lockwood was willing to listen to me and try the saving Sammy dose of Augmentin XR. Though we've added Dr. Tr

Homeopathic remedies helped my kids with ridding my kids of their PANDAS symptoms... I just want to spread the word that something cheap can make a major difference. Antiboitic did nothing and we d

St. Louis, MO: Dr. Tracy Fritz at Little Flower Center for Integrative Medicine

We just travelled from Seattle area to Hinsdale IL to consult with Dr. Kovacevic and the had IVIG treatment. He is nothing short of amazing. I highly recommend traveling to see him. The travel and treatment are expensive but my son was in excellent hands, and Dr K expects that he will have a 90% or greater resolution of symptoms within 3 months. Good luck.

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We live in southern middle Tennessee, and are in the beginning phases of possibly getting a PANS dx. We had the Cunningham Panel which showed elevated CaM Kinase (137), and was border- line on the Anti-Tubulin,   1:1,000.   Does anyone know how these values correlate in terms of Dx or treatment if any? Also if there are any good knowledgeable PANS Dr's in the southeast. We are not too far from Vanderbilt Children's hospital. Feeling desperate and overwhelmed....My dtr is 15 and we are just barely getting by.😔

 

 

 

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Hi-  I'm new here and looking for a doctor that is close to Virginia Beach, VA.  My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it.  I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop.  Any insight to a doctor would be great.  I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive.  Thanks!

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On 3/19/2018 at 10:23 AM, amychris03 said:

Hi-  I'm new here and looking for a doctor that is close to Virginia Beach, VA.  My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it.  I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop.  Any insight to a doctor would be great.  I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive.  Thanks!

Richmond, VA —

Dr. Wei Zhao at VCU. Takes insurance. Communication sometimes slow but orders ivig and plasmapheresis depending on case. Changed our lives. 

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