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Any one heard of Dr. Sims


ccc
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He had both but mostly vocal. At the time he was doing eye blinks with a roll and deep hic-up. They were so bad on Wednesday that he threw-up. I hurt so bad for him because he doesn't understand why it did not work.

 

 

I know how you feel. I feel exactly the same way for my son. I did mention this to a neurologist that we had seen, and he smirked of course and then said, it might work for those people with motor tics. This is why I wanted to speak to moms of others who had already had the device. When I spoke with Gail in Florida, who I believe is on one of the videos, she did say that her son mostly had motor tics, with some clearing of the throat things. The device is working great for him, but again, the tics were motor. She also said he complained after a few months because a tooth had come out and the device needed adjusting, but that once that was done, he stopped complaining that it was hurting him.

 

Did Dr. Sims say that after wearing the device a few more weeks, or months, that the tics would decrease?

 

Linda

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CCC, my heart goes out to you.

Newtotics, I urge you to share what you know with us. There are many of us considering to go. We know that this cannot be a cure-all, but we want to hear any possible thing we can about it.

 

Dalit

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No he only thought it would work if he had his upper jaw fixed. If the deceive is going to work it will work instantly.

 

 

I am devastated. This was my fear all along with Dr. Sims. I am still going tomorrow but my hopefullness is gone. My son is mostly vocals and I have now lost all hope that he will be able to help. I have been unable to find what triggers my sons tics and they have been at a high for almost 4 months now. I can't stand it. Anyway, we are off tomorrow. I hope I can share some more positive news with everyone.

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ccc,

well thanks for your information. I am worried now too. But did you have to pay for the device anyway? did you take it with you and are you going to try it out for a while? So Dr. Sims thought your son's upper jaw was too small? so how can that be fixed? shouldn't he have seen that in the first place?

 

I also don't understand about the sticks being put between the teeth. If the idea is to take pressure off the nerve, wouldn't just opening one's mouth and not biting down be the same thing? like not letting your top molars touch the bottom molars? is that what is being simulated? or is it moving the jaw around somehow. I really don't get it. I know you said you had trouble trying this out with your son because he kept moving, but did the doctor think it was worthwhile to go ahead and fit him for this anyway? I was under the impression that you will definitely know from that visit if this is something that will help.

 

Oh gosh, if we cannot see any improvement just with this initial visit and test, I can't see how I can get the device, my husband will never go for it "just to try it". At least we know now to be a little guarded.

 

I agree, if NEWTOTICS is reading this, please, please help us to understand better what this is about and how it has helped your child. some of us here are suffering, and you must know what that feels like.

 

Faith

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On our first visit on Monday Dr. Sims told us that my sons jaw was too small and he would eventually need to have Ortho work but thought he could wait. When we tried the temporary it did not work that well because my son could only keep it in the right spot for 2-3 seconds so it was hard to know if it would work. I will say that he did not pressure us to order the device but we had just drove 11 hours and he told us that he knew it would work. So we decided we came this far to turn around and we would always wonder if we should have tried it. The position that he is trying to get is to move the jaw forward away from the nerve number 5. If you go and look on line at a diagram of cranial nerves you can see what He is talking about.

I hate that I have caused lost hope for some but I had to let everyone know the truth for us. My husband is thinking about calling Dr. Sims and asked for some of our money back since it did not work. We do have the device and don't mind paying for what he says works with the movement of the upper jaw. I feel like he is onto something but obviously has not seen enough patients to perfect it. We are like test studies and there are some kinks in his work. He said that with my son he had been thinking 1 dimensional instead he realized he needed to think 3 dimensional and thought that the upper jaw was rubbing the side of the nerve also. He had been looking at only the front of the nerve with the lower jaw. So my advice would be to not order if you do not feel 100% confidence with the temporary. I wish you all the best of luck and will be praying for success.

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ccc,

Sorry to hear the device did not help your son. I was really hoping it would help your son. I was hoping to hear better news from you but thanks for telling us your experience. I am here if you ever need to chat. I know how frustrating it is to try something to help my sons tics and it doesn't work. Does the device look like a regular retainer? Gail has emailed with her experience so far with her son wearing the device. She said her son had motor tics and some vocal tics and very bad OCD. Her son has been wearing it for 2 months now. He wears it all the time and takes it out to swim and brush his teeth, also to eat certain things. It was only uncomfortable for him when he lost a tooth but after his tooth grew in,it was comfortable again. As soon as the device was put in his mouth the tics stop. At first when her son would take it out, the tics would start again. But now they do not start up right away, if he takes it out. And his OCD is better too. She sounds very nice and is willing to share her story. Char...

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Hi,

I was wondering the same thing--is the device like a retainer? The viedoes showing the fitting process it looks so bulky. I was wondering the same thing in does it resemble a retainer.

 

Deanna

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My sons is very bulky. His is taller in height than most kids he said but it is causing some pain with one of his bottom tooth. The Dr. said it was common at first to have some discomfort but it is so larger he can barley cover his mouth with his lips. When he does he looks like someone making a monkey face. I have been giving him motrin hopefully the pain will not last long. I never had a retainer growing up but my husband did and he said it was similar.

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Oh my gosh, ccc, I'm so sorry to hear this.

 

I really do thank you for sharing how this has worked for your son. My son has vocals 99% of the time so this is not good news for me. Did you all have the TMJ MRI that has been talked about?

 

We have our appt. with my son's ortho Mon. If we are looking at 10 to 12 months for his 6yo molors to be pulled up, how long did he say your son's upper jaw work would take?

 

CP

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He said 4-5 months. I was wondering how old your son is because I know you came the day after us and Dr. Sims was telling us about a boy that he saw that was 16. Did not know if that was your son or another patient.

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hi all,

just doing some last minute research before our trip tomorrow. I just wanted to post this link I found, its from another dentist site (in the UK I think), but at least it refers to TMJ and mentions Dr. Sims, so at least it shows that other dental docs are aware of him. don't know if its useful to anyone, but never know.

 

 

http://www.openwide.biz/headaches.asp

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Well I did the at home test and cut down some wide popsicle sticks and had my son bring his lower jaw forward and went up to 5 sticks on each side. Right now we have some vocals...not really bad just a hmm sound but very often. After a few minutes it stopped and i asked him if he is controlling it, which he can usually for a bit of time, and he said no....he said wierd I don't feel the urge..... I will have him try this a few times just to see if it is him wanting it to work or really works. Like I said before he gets so many headaches, said his jaw does hurt when chewing awhile (maybe that is normal, don't know) He doesn' t really complain of jaw pains. Also I do know he took a hard fall to his chin when he was younger...so much that my sister scared me by telling me his tooth went all the way through his tongue...ran him to the emergency rooom since the blood would not stop but they said it will heal on its own. I know I had TMJ a few years after falling from my bike and hit my chin still have a scar from it. We have TMJ specialists in our area, the same one I went to is still doing it from 20+ years ago... Wonder by going to one of them if they would be able to diagnosis it and have an understanding of it. I remember the appliance I wore and it was a clear retainer covering my upper teeth and the front had a groove in it that would hold my bottom jaw forward.... Wonder if this is the same appliance he is using. What would be wonderful is my brother actually works for a dental lab that makes crowns and such for doctors and wouldn't it be sweet if I had a dentist that would work with him and he would make it for me.... I know he was able to help out some siblings with their crowns.... okay want to test this a bit more in the next few days and see what happens..... ahhh it would be so nice if this would stop the tics and the headaches for him

 

Mary

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mary,

I don't why I can't get the gist of this testing with the sticks. but what exactly is this supposed do? where did you put the sticks? between the back teeth when they bite down? please explain this a little more. because I'm thinking wouldn't just NOT biting down and keeping your jaws open do the same thing?

 

thanks

Faith

 

ps. I don't think all dentists or TMJ specialist will agree that this has something to do with tics and tourettes. however possibly being diagnosed or treated for it may shed some light if it is connected. however, I don't know if there is any clear cut treatment, TMJ is one of those things like chronic fatigue syndrome or fibromyalgia, I think, altho don't quote me, but I do think diagnose and treatment is still a little iffy on this, people are always searching for answers.

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