MMC Posted May 21, 2009 Report Share Posted May 21, 2009 Hello, I am new to this forum. I am posting this request in hopes someone knows a doctor in the raleigh/durham, nc area that acknowledges pandas and has treatment options. Or even a doctor in NC within driving distance of the raleigh/durham area would suffice. Our 10 year old son has recently started showing signs of pandas. He has developed severe tics and some adhd after being exposed to strep from his sister about 2 months ago. He was put on antibiotics (w/o a strep test), and his sore throat cleared up...we are pretty sure he had strep at this point due to the onset of pandas. We believe our daughter has had pandas for 8 years, since she was 5. She has slight to moderate tics, that will come and go. I was diagnosed with sydenham's chorea in 1972 when I was 7. I believe it was really pandas, but this is the closest thing they knew to diagnose with back then. We had dealt with having one child with pandas very well, but are now overwhelmed with two. And it has hit our son a lot harder...we are really struggling about what to do. We are currently seeing a neurologist at Raleigh Neurology...he is aware of tic disorders and knows some about pandas, but I want someone to see my child who has a history with treating pandas. Currently, this neurologist has prescribed a couple of drugs to calm him down at night and we have a follow-up appointment in a month...we need more than this. I want to know the best options in preventing strep, etc. For 10 years, I was given a monthly injection of bicillion to prevent strep. From what I understand, this was normally done when rheumatic fever was confirmed...but it never was in me. Regardless, I didn't get strep any more, and pretty much grew out of my symptoms. Now, doctors don't want to prescribe antibiotics as a preventitive action from what I see. I understand resistance can be a problem. Thanks in advance for any advice on nc area pandas physicians. Link to comment Share on other sites More sharing options...
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