melanie Posted May 16, 2009 Report Share Posted May 16, 2009 Dr is going to put danny on 500 mg 2x per week.Is this going to be enough? I know its better than 250 1x per week but would it be better to cut them and do 250 4x per week?what should I do / Melanie Link to comment Share on other sites More sharing options...
EAMom Posted May 16, 2009 Report Share Posted May 16, 2009 Dr is going to put danny on 500 mg 2x per week.Is this going to be enough? I know its better than 250 1x per week but would it be better to cut them and do 250 4x per week?what should I do / Melanie Hi Melanie, I would think 500mg 2x weekly would be adequate to prevent strep. However, would your doc be okay with doing 500mg daily for a couple of weeks in case their is a low level of active strep hiding out? also, the higher dose of Azith. would presumably have a higher level of anti-inflammatory/immune modulation. how is danny doing? I think you should also consider sending dr. K an e-mail. Even though Danny is older he may have some insights. I wonder if PEX would be helpful? It is interesting that Danny appeared to improve on Azith. and then declined when his dose was lowered. Link to comment Share on other sites More sharing options...
melanie Posted May 16, 2009 Author Report Share Posted May 16, 2009 Dr is going to put danny on 500 mg 2x per week.Is this going to be enough? I know its better than 250 1x per week but would it be better to cut them and do 250 4x per week?what should I do / Melanie Hi Melanie, I would think 500mg 2x weekly would be adequate to prevent strep. However, would your doc be okay with doing 500mg daily for a couple of weeks in case their is a low level of active strep hiding out? also, the higher dose of Azith. would presumably have a higher level of anti-inflammatory/immune modulation. how is danny doing? I think you should also consider sending dr. K an e-mail. Even though Danny is older he may have some insights. I wonder if PEX would be helpful? It is interesting that Danny appeared to improve on Azith. and then declined when his dose was lowered. I know its very interesting and Im greatful that this Dr is willing to give him this .Im going to go to the dr today and try and get them to write me a script so I CAN have more zith to give him is PEX penicillin? He has an allergy to penicillin or he did when he was 5yrs old is that better? Melanie Link to comment Share on other sites More sharing options...
EAMom Posted May 16, 2009 Report Share Posted May 16, 2009 PEX is plasmaphoresis http://medical-dictionary.thefreedictionar.../Plasmaphoresis In the 1999 Swedo (lancet) some kids got PEX, some got IVIG. Both groups improved. I know Dr. K feels that IVIG doesn't work (for PANDAS) after puberty. I don't know about PEX. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now