ShaesMom Posted April 28, 2009 Report Share Posted April 28, 2009 Hi. I have a 6 year daughter who is has been chronically ill for at least the last year and half. We are visiting a Ped. Rheum. next week to see if she has RF. Her health history is as follows: 11/07 Postitive Strep Test 12/07 back at Dr still complaining of sore throat-nothing done 1/08 Separation Anxiety shortly after returning from xmas break. Anxiety had never been an issue before. 1/08 Back at Dr-Mom complains of changes in her behavior. Put on Septra for UTI. Immediate change in behavior 4/08 Back at Dr-Mom complains of changes in behavior-moody, grumpy & aggressive. Put on Septra again--behavior improves refuses to ride her bike or scooter because it hurts her legs. Doesn't like to walk far. Constantly complains of sore throat but the dr never sees anything to warrant a strep test. 5/08 Brother positive for strep given antiboitic 6/08 Brother back at dr-given amoxicillian 8/5 Back at dr-Mom complaining of behavior changes, sore throat 12/08 Back at dr again-checked for UTI given Septra again - behavior improves xmas 08 Classmate positive for strep 1/09 constant complaints of sore throat and tummy ache. Starts refusing to go to activities. 2/09 Behavior gets worse- anxiety sets in, starts lashing out, doesn't want to be away from, moody, grumpy, lethargic, won't play with brother or friends 3/09 Separation anxiety has increased to a level 10. Panic and fear are evident when it is time to go to school. Physically shaking, seems desperate. won't leave parents side, starts sleeping in our bed, clingy, constantly telling us she loves us. Starts complaining it feels like something is in her eye-daily. Exhaustion is normal even after 11 hours of sleep. Looks pale & sick. Power struggles, starts going through the terrible twos again. 3/09 Back to doctor--they find nothing wrong with her. Mom insisting something is wrong--she always improves for a short period when on antibiotics and then symptoms reappear a few weeks later. Rapid strep test negative-- to my knowledge it was not sent to a lab. Notice handwriting is becoming very sloppy & hard to read. Refuses to play--only sits on the couch. Never wants to leave my side. Will no longer go to the neighbors house. 4/09 Back at dr-insist on blood work. ASO titers are 1,100. Started on amox--behavior improves in 12 hours. Anxiety still exsists but is to a level 1-2. I have never noticed any tics and i don't know a lot about OCD behaviors. I do know I have spent the last 1 1/2 taking her to dr only because her behavior changes set me off thinking something is wrong. She nevers complains of anything other than the constant sore throat but the dr never sees anything. Actually, she also complains of her legs hurting all the time but we just put it off to growing pains (we didn't know any better). I have told me husband this whole time that I believe she has an infection in her body and the antib. make her feel better for awhile. I feel like I may be onto something with the PANDAS but wonder about her lack of tics & OCD behavior. 1) Do any of your children also have RF? 2) Has separation anxiety been a major factor? 3) Does this sound like PANDAS to you? 4) Can anyone give me the name of a Doctor in the Omaha, Nebraska area who believes in PANDAS? 5) What type of specialist should I take her too? I would appreciate any help and advice. My husband and I don't know where to turn to at this point. Sam Link to comment Share on other sites More sharing options...
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!Register a new account
Already have an account? Sign in here.Sign In Now