Chemar Posted June 16, 2008 Report Share Posted June 16, 2008 I thought it might be helpful if we keep a running thread where we can try to compile a database, all in one thread, of the many things we discuss that have helped reduce tics, OCD & other associated issues that we represent here. Having each member "summarize" their child's diagnosis and /or symptoms and then document what has helped, would really be so beneficial for all of us as reference, and especially for newcomers to be encouraged by It would be appreciated if we not use this thread for discussion but *ONLY TO DOCUMENT* our stories thanks! ---------------------------------------------------------------------------------------------- here is our story: ( I have the details at this link(long thread!) Short version: My son has had "issues" since birth (conception if genetics considered, as he has inherited Tourette Syndrome spectrum of disorders) and is dx with ADD (no H) Central Auditory Processing Disorder, Sensory integration Dysfunction, Tourette Syndrome, OCD, anxiety ( and more recently Crohn's) Meds have all had horrid side effects, and it wasnt till we drastically changed his diet & added needed supplements that we saw relief! Important factors: ----nothing chemical or artificial eg no sugar substitutes like aspartame/nutrasweet and sucralose/splenda, absolutely no high fructose corn syrup, no artificial food colorings-dyes no artificial chemical additives ....if it has a long list of ingredients it is usually a big NoNo,! no MSG which is so prevalent and goes by hidden names no preservatives including ubiquitous sodium benzoate, NOTHING chlorinated and no white flour, white sugar etc (my son is very reactive to chlorine & derivatives) etc My son doesnt appear to have any natural food Allergies ie no gluten or dairy intolerance but is highly reactive to chemicals in foods and environment, and has dustmite and some other environmental allergies. He has a diagnosis of Multiple Chemical Sensitivity (MCS) We found out via alternative physicians testing and personal research what nutrients my son was deficient in Bonnie Grimaldi's pioneering research and sharing of what she had used successfully was a blessing and helped formulate a supplement program for my son! Her Bontech supps werent around then but she had a website with her program which I and his physicians used to formulate his regimin (Sadly BonTech now discontinued) Magnesium and taurine along with good multi vitamin/mineral supplemts(s) seemed to have greatest benefit for his tics-- tho I firmly believe they need to be in combination with other vital nutrients (eg omega 3) to work optimally, and that it was his combinations of supplements that helped his tics reduce in frequency, duration and intensity, as well as helped in not having the OCD such a controlling factor in his life. Heavy Metal testing required chlorella to help chelate mercury out of his system and also then had cilantro and ALA to mop up any remaining mercury (note ALA should never be used first as it can carry mercury into the brain from what I understand) Initial treatment for the Candida albicans ("yeast") infection to his GIT was a very careful diet for a couple of months with capprylate (caprillic acid) as the yeast buster, and organic Kefir and natural yoghurt to restore good flora. We later found Candida Support by NOW and find it excellent whenever yeast regrowth is suspected We did have strep antibody bloodwork done at Shands (Dr Murphy) bu he was considered not to be PANDAS, tho PITANDS is very likely IMHO as he has had microbial exposures according to radiogenics/transdermal testing we had done, and he has used anti-microbial supplements like monolaurin, olive leaf extract and oregano oil, amongst others He finds acupuncture the most helpful therapy (we have a therapist who does it in combination with biofeedback therapy and other holistic electronic therapies,plus reflexology, chinese cupping, aromatherapy, herbal teas etc!--all in one hourlong session @ $85!!! ) He also has monthly chiropractic adjustments to help what tics tend to put out of alignment He had some Cognitive Behavioral Therapy for the OCD and Tourettic OCD (when Tics and OCD morph into each other) Occupational Therapy was also very helpful for the sensory integration problems (he has always been very sensitive to light, certain sounds, smells, some tastes and oh so hypersensitive tactily) Epsom salt (magnesium sulfate) tub soaks are very helpful to his tics and general relaxation His Crohn's is also being wonderfully controlled with careful diet and GIT healing plus substances plus anti-inflammatory supplements, which seemed to also benefit the tics Also--Minimizing stress and keeping things as stable and relaxed as is possible has made an enormous impact on his overall health. OK I think I covered all ours tho I will likely remember more and need to edit in It would be so helpful if other members would share their effective testing and treatments here too please thanks Link to comment Share on other sites More sharing options...
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