PandaEverdeen Posted September 27, 2021 Report Share Posted September 27, 2021 Hello there, I was diagnosed with PANS through the Cunningham Panel in January of this year, and at that time had gone into remission after starting a course of natural antibiotics a naturopath prescribed. I was instructed to increase the dose of the antibiotic by 5 drops every 5 days, and it worked fantastic. (I'm still on that antibiotic, although I've reached the maximum dose I can be on for it.) The flare returned in March for no apparent reason, and has continued for almost seven months. I have tried numerous natural antibiotics of varying doses (grapefruit seed extract, wormwood extract, allicin, etc), 1000 mg/2x day Augmentin, and 250 mg/1x day Zithromax (Zithromax appeared to work the best. For 24 hours.) The symptoms respond the same way to everything (unless they don't respond at all): I start getting better for 2 days, have a really good day or two, see a decline the day afterwards, and the flare is back. It all happens within 3-4 days on every single antibiotic I've tried, and makes no sense. The flare symptoms get worse every time an antibiotic stops working. Complicating factors include that my doctor and I suspect I have Lyme and/or babesia, my thyroid swells when I have a PANS flare (not sure if it's related, but I thought I'd mention it), and I have a recurring sinus infection that comes back when the flare does. I strongly suspect the sinus infection is strep, but nothing seems to kick it out. I am on a Lyme protocol that includes a biofilm remover and a cyst buster, so that is not going untreated. (I had a terrible herx the first time I introduced each Lyme protocol component, but as it stands now I'm at maximum dose for each component with no herxing and no improvement in PANS symptoms. However, if I quit the components of the Lyme protocol, PANS will worsen, so it's doing something at least.) Any help would be greatly appreciated. Link to comment Share on other sites More sharing options...
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