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IVIG ocd pans pandas


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My daughter 15 is getting the monthly 3 day course of IVIG and she just left 3rd treatment. 
 

I hear how kids feel immediate results, but she is still struggling and sometimes after symptoms are worse. I have been told it may take literally 6 treatments before I know if it’s working but doctor is doing lymes test next.

 

so confused and discouraged

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  • 3 weeks later...

I have read the dose must be high e.g. 1.5g/Kg , some say 2g/Kg , for example if your child is 65Kg he'll need 100 to 130gr.

This is usually split in two days, so 50gr / day. And the rate should be predetermined by the doctor.

I have read frequent low dosage shots are not recommended.

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