Jump to content
ACN Latitudes Forums

IVIG ocd pans pandas

Recommended Posts

My daughter 15 is getting the monthly 3 day course of IVIG and she just left 3rd treatment. 

I hear how kids feel immediate results, but she is still struggling and sometimes after symptoms are worse. I have been told it may take literally 6 treatments before I know if it’s working but doctor is doing lymes test next.


so confused and discouraged

Link to comment
Share on other sites

  • 3 weeks later...

I have read the dose must be high e.g. 1.5g/Kg , some say 2g/Kg , for example if your child is 65Kg he'll need 100 to 130gr.

This is usually split in two days, so 50gr / day. And the rate should be predetermined by the doctor.

I have read frequent low dosage shots are not recommended.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Create New...