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Mold remediation for tics - has this worked for anyone?


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Has anyone had success with eliminating or reducing tics after removing mold from the home?  Our daughter developed tics about 3 years ago and we are seeing a functional medicine pedi who identified thru bloodwork that her body is very sensitive to mold and she thinks the tics are a byproduct of the inflammation in the brain due to mold exposure.  Calls it CIRS - Chronic Inflammatory Response Syndrome.  We had our home tested for mold three times and mold levels were high in the air, but no major source of mold was found except that there is mold on our a/c system and the humidity level in our home is too high.  We live in the south - humid climate.  We are getting a completely new a/c HVAC system installed with a rem-halo cleaner.  However, she also recommends we have our home remediate by a mold remediation company.  We have talked to two.  First one said we could completely remediate her bedroom and remove carpets in the home.  2nd one said entire house needs to be done including removing the entire contents of our home while they wipe down and clean every hard surface.  We would need to get all new furniture, mattresses.  Basically anything that’s not a hard surface needs to go.  Total cost for this endeavor would be $30-40k which is mind boggling.  And no guarantees that this is going to fix the problem.  Has anyone been thru this and did it help?

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My daughter has CIRS and yes, that can cause tics. In her case, the mold exposure was/is in the schools. We found three things helpful - improving the environment, treating a fungal infection in her sinuses (frequently accompanies an infection called MARCoNs) and helping the body detox. I could write a novel on all of this, so I'll only focus on the environment since that's what you asked about.

We did some basic cleaning up of our home (replaced carpets with hardwood, tossed lots of things from the basement, run a dehumidifier, got rid of house plants) but our ERMI test showed that the house wasn't the problem. And there wasn't much we could do about the schools. So we fought a long battle and eventually got the district to put IQ Air GC Multigas air filters in each of my daughter's classrooms. Her attendance went from a few hours a week to full time. So definitely consider this kind of filter - it's portable and most sellers give you a 60 day return policy if you find it doesn't help.

For your house, if the problem is with the AC, then it's likely that mold spores have been spread throughout the house. So it's not crazy that the 2nd company is suggesting such an intense approach. But...I'm wasn't born wealthy, so I can understand wanting a more realistic approach. The AC system obviously has to be fixed in a way that the problem doesn't come back. And I would definitely ditch carpets (even if it means having bare subfloors for a time) - make sure the carpets get rolled up into heavy mil plastic and removed out of the house through the closest windows, not carried through the rest of the house. Remediate what makes sense in the bedroom, and clean everything you can on your own in the rest of the house (window treatments, all clothes, wipe down everything you can with Benefect or EC3 cleaning supplies). Get the IQ Air filter for your daughter's room and maybe the family room. Consider mattress encasements and replace pillows. Make sure your washer doesn't have mold. Do the easy/cheap/obvious stuff yourself. Then between this level of remediation and detox, see how she feels. If the tics start to subside and she starts to feel better, you can chip away at the problem until she gets healthy.

If she doesn't recover fully, then keep looking for a mold source and consider more extreme measures. You can find helpful information here http://moldcontrolonabudget.com/  The site is run by May Dooley and she's super helpful. You may ultimately need to go full out, but nothing says you need to do it as a first step. Hope this helps.

 

 

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Hi Deb22 -- and welcome to the Forums. I agree LNN had some great suggestions.

Just to let you know, we've received many reports on mold as a trigger for tics, as well as it causing other health issues plus behavior/emotional reactions.  We hope you will keep in touch, letting us know how you make out and what new insights you come across as well. Best of luck!

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That is good to know!  We have opted to move forward with mold remediation- found a more reasonably priced company - but it is still quite costly.  The only source of mold in our home that was found after having three different experts come try to identify the source was in our a/c HVAC system.  We are having the entire system replaced, then the remediation completed.  Daughter is on Cholestyramine for now per her dr.  I will share progress when we see it.  Thanks for your input!  It’s a lengthy process, but hoping and praying that it will be worth it in the long run!

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