AlwaysWorriedMom Posted June 14, 2020 Report Share Posted June 14, 2020 I’m feeling so angry and sick these days. My son is only 6.5 and we’ve been dealing with this for almost a year. I still can’t seem to accept that this is our life now. I’m angry that we have to go through this when we have done everything possible to ensure our kids were healthy and safe. I look at my friends’ kids and think “why us? Why are we being punished?” My son had a relapse in the beginning of quarantine and after speaking with Dr Schulman in May we started him on Clavulin (the Canadian version of augmentin) with a plan to taper the meds once he was doing well for several weeks in a row. He was doing SO WELL and we finally started to have some hope, and then a week ago today he started this new tic he’s never done before out of nowhere where he bends his arms and his wrists are limp (kind of like a t-Rex). He had a very loose tooth and I knew that could cause a flare, but the tooth fell out on Thursday and the hole seems to have closed up and the tic is actually worse than ever. Yesterday was my older son’s birthday and instead of enjoying it I spent the whole time watching my younger son’s constant tic and feeling sick about it. I was up all night with a stomachache from stress. i can’t go on like this. I hate what my life has become and I’m crying all the time. I have no idea if this will ever go away, but even if it eventually does, we have a long road ahead of us and I don’t feel strong enough to get through it. My husband is angry with me for constantly feeling like this but I can’t help it. I don’t know what else to do. Link to comment Share on other sites More sharing options...
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