C_deangelis Posted March 31, 2020 Report Share Posted March 31, 2020 Hi guys! So I was diagnosed at 7, and I’m 25 now. Side note if anyone has any questions or needs support or advice I’m always here to lend a perspective about what your kiddos might be going through. I remember it all very vividly. I was wondering if I could get some recommendations for supplements/treatments. I recently started having a bad flare up of OCD symptoms, hasn’t happened in a very long time. My previous DBT training and therapist are a huge help- I can manage it. But I’d like to reduce the symptoms as much as possible. I work in an OR and it’s difficult to manage intrusive OCD thoughts when you’re trying to help with surgeries haha. Also, love to all of you. It’s been really nice reading this forum and seeing how much you all care about your children. You’re rockstars never forget it ❤️ Link to comment Share on other sites More sharing options...
4Nikki Posted June 27, 2020 Report Share Posted June 27, 2020 How’s your mitochondrial cells? When we discovered mitochondrial deficiency, support made a big difference. My daughters immune system is sensitive to big changes and easily overreacts. If we use something long term her immune system start to reacts. We have to write a daily journal and track everything. History helps big time. Link to comment Share on other sites More sharing options...
wisdom_seeker Posted July 1, 2020 Report Share Posted July 1, 2020 On 6/26/2020 at 9:40 PM, 4Nikki said: How’s your mitochondrial cells? When we discovered mitochondrial deficiency, support made a big difference. How did you find that there's a mitochondrial deficiency? Are there valid commercial tests? I have heard more people mention this as a cause of fatigue or result of mold, abx or such, but so far nobody suggested getting my kid tested. Naively I'd always assumed that it's often local, not systemic -- that there could be deficiencies, say in the brain or gut, that wouldn't show up on a blood test. Link to comment Share on other sites More sharing options...
4Nikki Posted July 11, 2020 Report Share Posted July 11, 2020 (edited) Her pandas doctor ran the tests. They even have a swab test now that tests if they work properly. Edited July 11, 2020 by 4Nikki Link to comment Share on other sites More sharing options...
wisdom_seeker Posted April 26, 2021 Report Share Posted April 26, 2021 What's the test? Could you tell what sort of deficiency there was? Link to comment Share on other sites More sharing options...
ejh Posted May 1, 2021 Report Share Posted May 1, 2021 I also am interested in what this test it. And is it part of the whole work up for PANDAS or do they do it based on specific symptoms or patterns? Link to comment Share on other sites More sharing options...
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