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xh1688

Psychiatrist or neurologist in North California

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Dear all,

We are desperately looking for a psychiatrist or neurologist in San Francisco Bay Area who is experienced to Autoimmune Encephalopathy,  and is willing to prescribe IVIG.

Any referrals and sharing will be greatly appreciated!

 

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We're still consulting with Amy Smith RN/NP but she's based in Orange, CA now, and we haven't been able to see her in person for awhile. When I did a search for new local practitioners, it seems there are even fewer than when we started all this 7 years ago.

Children's Hospital in Oakland, ID department, was willing to do 2 high-dose IVIg sessions (due to hypo-gammaglobulenemia, sp., not AE but they are likely familiar w/AE), 2 years ago. Our CHO psychiatrist just retired, but was versed in PANS but wouldn't RX IVIg, which is how we ended up in the ID dept. there.

Will be curious if you find someone and who it is. Good luck!

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