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  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

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MaryAngela

Synapsin nasal spray

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I saw one positive post on Synapsin nasal spray.  My DS 15 will be starting it today. He was a severe PANS case.  OCD and tics 80% gone from almost 2 years of monthly HD IVIG.  He still has focus, anxiety and executive functioning issues.  I’m wondering if anyone else has tried it, and how it worked out.  

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It is prescription.  It’s made at a compounding pharmacy. I was hoping my DS would start last Saturday, but it wasn’t shipped when I thought.  Should arrive tomorrow.  I’ll keep you posted.  

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