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tj21

HD IVIg and Distance Vision Problems

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Starting new topic from below linked thread, since IVIg is the variable in our case.

-DS19 has had six HD IVIg sessions (2 in 2018, 4 in 2019) and since January 2019 his vision cannot be corrected with glasses to 20/20. Has gone from 20/40 to 20/200 WITH GLASSES since January. I suspect it fluctuates because he's not complaining all the time, nor stumbling around, which one would at true 20/200 vision.

-Has had 5 optometry and 1 ophthalmology appt. with 2 dilation medical exams. Eye structure itself is fine.

-Waiting for a Neuro-Ophthalmology evaluation but since IVIg is the only thing that's changed, wondering if it's related. 

-Have call into PANS NP to discuss.
 

 

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