Garden Posted January 15, 2019 Report Share Posted January 15, 2019 Hi, It appears both daughters have PANS/PANDAS, after seeing many conventional specialists, and several believing PANS or PANDAS is the correct diagnosis. Some symptoms I don't see frequently in the literature, though, and I wonder if they are related. Abdominal pain. Several local doctors say they see that a lot in PANDAS patients. Why isn't it listed as symptom? That is the most-complained about symptom for both kids (they don't complain about the OCD (both), tic (one), anorexia (one) - that's all me!). We wasted a lot of time/energy with GI tests and procedures that showed nothing. Leg pain. Huh? Why? Is this related? Sometimes it flares at the same time as the stomach pain. Joint hypermobility and/or Ehlers Danlos syndrome. Is this co-morbid? Loose ligaments as symptom? EDS kids more vulnerable to PANS? I'm just wondering how many problems I have on my hands... Thanks for any help you can give! Link to comment Share on other sites More sharing options...
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