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DS8 Lyme Diagnosis / NYC


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Hi All,

It's been a few years since I've posted. DS11, who had a mycoplasma infection and many of the issues associated with it, has come out on the other side. He's just started middle school and is doing very well!

Unfortunately, DS8 has just been diagnosed with Lyme. Our pediatrician prescribed 500mg of amoxicillin, 3 times daily. We just visited an infectious diseases pediatrician this afternoon. I presented him with two questions:

  • Should we test for co-infections?
  • Should we be using an intracellular antibiotic?

I was surprised that he answered "no" to both questions. He simply said the co-infection Babesia would have resulted in a terrible fever and headache and that would have been the end of it. As for an intracellular antibiotic, he looked at me quizzically and said, "Lyme is easy to kill.... You've been reading the wrong stuff."

I may be a bit rusty, but I still believe next steps should involve finding an LLMD and addressing the two above issues.

Any guidance / suggestions will be greatly appreciated.

Thanks!

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Where  in NYC are you located?

Lyme is not so easy to treat if it is present for a long time unfortunately.  Lyme that is relatively fresh (under a year old) is not so bad and could be resolved with amoxicillin 3 X a day for 30 days.  What were the symptoms that made you test for Lyme?  And which lab did the testing?

There is a doctor in my area (forgot her name) who trained under Dr. Horowitz from Hyde Park who treats lyme patients. If you need that info please PM me.

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Thanks for your reply!

I'm in Staten Island.

My son was experiencing hip pain back in September. It was first diagnosed as toxic synovitis. When it recurred recently, his ped. tested for Lyme, which came back positive (from Quest). This week, the specialist told us that he was likely infected in early summer. 

I just ordered the Blood Collection Kit from IGeneX to test for co-infections.

I'll PM you for additional info. Thanks again.

 

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