Tics and use of essential oils?

[cmontgom]

It’s amazing what you described here. The symptoms you describe are the exact tics our son had. We find that the tics move around or show up at different times in different areas. Now that we have it under control and when he eats a little something he shouldn’t the tics start in his stomach as you describe and a head nod until we can get it out of his system.  We know your concerns of pain and other kids. At its worst our son could barely walk as he would take a few steps and he would stop and one side of his body would seize and shake with his tongue sticking out. Yes some kids are cruel and my wife made many phone calls to parents explaining our situation and to please speak to their kids. It was the hardest thing we have ever dealt with. The worst days like that we would keep him home from school. After a while our son would tell us the amount of pain he was in due to his body straining and the headaches he was getting. He looked as though he had MS when he walked. We had him tested for all of this and came up negative. Oddly enough I spoke in depth with someone who’s brother was diagnosed with MS for over 20 years. At his worst the doctors told the family to monitor his diet and they found an organic natural diet helps. The family took turns staying with him and cooking organic meals for him. They noticed in a matter of weeks that his MS symptoms were dramatically lowered and within a year all symptoms were gone and doctors tested him and said he no longer has MS. Supposedly there is no cure for MS.... They did exactly as we did. Essential oils and diet. Sorry to speak of all that but I found it amazing the similarities. 

Our son was also 8 years old when his tics started. Almost exactly 2 weeks after his 8th birthday. As you research you will find testimony that those that are diagnosed with tics or Tourette’s almost always happens when a child turns 8 years old or somewhere very close to that age. I’m still trying to find out the answer as to why that is. 

Thanks to my wife’s never ending search for answers other than drugs or no hope answers from our doctors she came across the use of essential oils and later about diet related symptoms. Once started down this road we both tirelessly researched daily and nightly. Ultimately led us to this forum to learn and share our story. I recommend meeting with a neurologist or specialist to at least rule out something we may not know. Otherwise I feel strongly the steps we have mentioned will drastically help and should see noticeable difference in a couple of weeks. To help sleep at night use lavender essential oils. If real bad use more. It helps with relaxing and falling asleep without use of drugs. I will have my wife post more info on here as well a little later. Hang in there!

[cmontgom]

T

Edited July 17, 2019 by cmontgom
Doubled

[MAMA3]

I know exactly what you are feeling. I spent day & night trying to find hope, trying to find anything to help our son. I was very sad, so scared & very angry some days. I prayed daily God would take it from him & give it to me. I didn’t want to talk to anyone about it either & I was extra protective of him. I was so thankful I found the post regarding oils. It gave us our son back emotionally. He struggled so much at school. I also had a talk with all the parents we knew from school. I explained to them what he was dealing with and asked them to talk to their kids(his close friends) & explain to them he can’t control it & how hard it was on him for everyone to constantly ask what was wrong with him. They stopped asking & they actually started watching out for him if someone was ugly too. The oils helped so much with his emotions & also helped him relax more at night. I recommend the lavender & peace and calming at night. The valor promotes courage & strength & along with stress away helps to relax him at school without making him sleepy. The vetiver helps to relax their brain/mind, again without making them tired. I also wanted to mention that we also tried the magnesium supplements, but stopped after his bloodwork showed he was not deficient on any vitamins/minerals. I know what you’re feeling & you’re not alone. I now tell our story on Facebook & have had people reach out to me also. I once felt like I shouldn’t talk about it & that no one would understand, but it helps so much to reach out like you have. We need to educate each other & share our stories & show others that there are more natural approaches. As my husband mentioned earlier, I also recommend you meet with a neurologist just to get clarification. We had bloodwork to make sure he was not missing key vitamins & minerals. The Guanfacine tablet does make a difference. Our son is proof that it is possible to have tics & still have a happy, normal life. I am here if you need anything, or have any questions. 

[Hope36]

Hi . Your story is amazing and inspiring. The desperation we feel as parents is so hard. BUT your story gave me hope. I find it so hard to change the diet. I want to do it but don’t know how. Where do you start? What do you give your son for snacks at school? How do you make sure he doesn’t it the “junk” when at birthdays or events?

Also can you please guide me to where younger your essential oils? I really want to try but there is so much online, don’t know what is quality or not?

again thank you so much and I hope your child is still doing great:)

all the best 

[MAMA3]

Hope36, 

I am so glad you saw our post. We started noticing certain foods would make his tics more noticeable & more out of control. We started removing all processed meats, especially hotdogs & brawts. We found these always made his tics flare up. We also cut out pizza, except for gluten free. We don’t believe he has a gluten allergy. However, most gluten free foods are also more natural with no preservatives & additives, which we believe affect our son. We also never eat Chinese food because of the MSG in it. It makes his tics awful. I buy only breads that state no high fructose corn syrup & it doesn’t seem to bother our son. I buy Healthy Life whole wheat bread at Walmart & also Sara Lee brand has some bread that is labeled no high fructose corn syrup. If we buy sandwich meat, turkey or ham, I buy Oscar Mayer Natural. It will show no artificial ingredients & no nitrates, which are additives to preserve longer. Our son likes peanut butter & Jelly so he eats that at school & we send lightly salted Pringles & organic granola bars. We also send organic annie’s Chocolate chip cookies a few days a week. I have also found that Kraft Mac & cheese does not affect him since they’ve removed the preservatives, etc. The Kraft Mac n cheese bowls are easy too.  We mainly stick to all fresh fruits & vegetables & we cook at home primarily so we know what is in his food. I know it’s overwhelming, but over time it won’t be. Mainly stick to fresh fruits & veggies. Also we use Young Living oils because they are more pure. You should be able to find a local contact who may sell them in your area. 

I hope this helps & we are always here!

Hugs

[cmontgom]

To add to my wife’s comments. The peanut butter and jelly we get is also all natural. Smuckers brand has all natural at Walmart and Jiff and Peter Pan peanut butter offers all natural options. We are Just fortunate our son loves peanut butter and jelly sandwiches and eats them every day at school for lunch. When he starts middle School we might be able to send things we make at home that he can heat up at school himself but we will cross that bridge when we get there. We also deal with the birthday parties and keeping him away from school foods. It’s hard. But we have told him he also has to do his part and stay away from foods he is not supposed to eat at school or at birthday parties. We tell him it’s not fair and we understand. But it is what it is. Sometimes he does eat these foods but eventually he knows the consequences and for a 9 year old he’s had to make very mature decisions on his own to say no which he mostly does now. We are very proud of him. What we have found since this started a little over a year ago is that his tics are inside him. We don’t know if they will ever fully go away or if he will outgrow them. Sometimes it stays dormant. Time will tell. What we do know for certain is that you have to look for the triggers that cause the tics to flare up. For us we know certain foods and ingredients are big triggers. So limiting or eliminating these foods, with the help of certain essential oils and his small dose of guanfacine medicine it really keeps his tics very low to unnoticeable. Like my wife said feel free to reach out to us any time and check back. We respond as quickly as we can each time. I hope this helps. Hang in there!

[Cristo-Krista]

On 7/17/2019 at 9:20 PM, MAMA3 said:

recommend the lavender & peace and calming at night. The valor promotes courage & strength & along with stress away helps to relax him at school without making him sleepy. The vetiver helps to relax

Where do you put the lavender and peace 

where do you put the valor 

where do you put hj stress away 

its young living oils or du terra?

[Cristo-Krista]

On 7/17/2019 at 9:20 PM, MAMA3 said:

The oils helped so much with his emotions & also helped him relax more at night. I recommend the lavender & peace and calming at night. The valor promotes courage & strength & along with stress away helps to relax him at school without making him sleepy. The vetiver helps to relax their brain/mind, again without making them tired.

The oils helped him relax and helped reduce tics?

lavender 

peace and calming 

valor 

stress away 

[Cristo-Krista]

On 5/26/2019 at 2:25 PM, MAMA3 said:

recent post on social media & they are also seeing positive results with changing diet & applying essential oils. I spend much more time at the grocery store checking labels on anything that is processed foods. I buy mostly fresh fruits, vegetables & all natural meats. We can always tell if our son eats something that is not within his diet. His tics are almost instantly much more visible & it takes a few days to get him back to normal. We are so thankful everyday to have our happy go lucky son back. We know that he may always have tics, but it’s so reassuring to know that it is controllable with something as simple as diet changes & his daily half tablet of  Guanfacine

Which social media account do you post info?

what is the guanfacine tablet? Any side effects?

[Cristo-Krista]

On 7/17/2019 at 10:07 AM, cmontgom said:

the oils we use I personally believe vetiver is the most effective.

What do you find veviter does? How does it help? Where do you put it?

 

[MAMA3]

2 hours ago, Cristo-Krista said:

The oils helped him relax and helped reduce tics? Yes they help him relax, which essentially helped calm his tics some also. 

lavender - we use a diffuser in his room at night. We also apply to his feet at night if he has trouble sleeping. 

peace and calming is applied to the back of his neck or spine at night. 

valor is applied to back of neck in the morning

stress away is applied down his spine in the morning

 

[MAMA3]

2 hours ago, Cristo-Krista said:

What do you find veviter does? How does it help? Where do you put it?

 

The vetiver seems to help our sons tics the most. We’re not really sure what it does other than possibly slow down the nerve sensory overload to the brain some. We apply it in the morning on his big toe when he’s getting dressed for school.

[MAMA3]

2 hours ago, Cristo-Krista said:

Which social media account do you post info?

what is the guanfacine tablet? Any side effects?

Guanfacine is a medicine commonly used to treat tics. We only give our son a low dose at night, which appears to have no side effects on him. Everyone is different, so you will need to discuss this with your doctor. It is one of the few medicines we researched that has minimal side effects. I believe the higher the dose it may cause drowsiness & dry mouth some. Again, our son shows no side effects. 

[MAMA3]

Just now, MAMA3 said:

Guanfacine is a medicine commonly used to treat tics. We only give our son a low dose at night, which appears to have no side effects on him. Everyone is different, so you will need to discuss this with your doctor. It is one of the few medicines we researched that has minimal side effects. I believe the higher the dose it may cause drowsiness & dry mouth some. Again, our son shows no side effects. 

Diet is such a big factor with our son. I recommend everyone look at diet also when dealing with transient tics. It really makes such a difference with our son.

[Cristo-Krista]

1 hour ago, MAMA3 said:

The vetiver seems to help our sons tics the most. We’re not really sure what it does other than possibly slow down the nerve sensory overload to the brain some. We apply it in the morning on his big toe when he’s getting dressed for school.

Which brand do you use? Can we buy it at whole foods for example ?