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PANS/PANDAS/Lyme/Seizures/Autism/Recent Seizures -specialists in FL or southeast USA that don't use just antibiotics?


jmiullo

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Moderately autistic 13 year old has been battling PANS/PANDAS for 2 years (if not earlier now that i look back at his behaviors).  working with an integrative/functional PA in FL but thinking we need someone who is an immunologist/MD but not someone who will just prescribe  Antibiotics, IVIG and not consider alternative medicines.  Each time my son takes antibiotics, he gets better once the whole round of antibiotics is completed,where he is super laid back, sleeps well,very calm, no OCD and much reduced tics to a point where i wonder if he's just lethargic and spaced out.   But this clam lasts but within a week, behavior slowly starts to become unstable and we're back down the road of self injury,rages,sleep disturbances, and his Tics and OCD progressively gets worse too.  .......last month alone he's had two seizures (2 to 3 minute ones each time).   I have no idea what next to do, think or even plan......Any feedback and suggestions will be much appreciated.

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