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lost99

Sudden onset of severe 'humming' tic

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My son, 11, has battled with tics for years although they have always been mild and mostly very manageable. Suddenly out of the blue a few weeks ago he developped a very intense humming kind of noise, very loud and constant, he is almost never quiet. In between every sentence he kind of hums (loudly!), even when he is reading or on the computer etc. In a bout of tears he mentioned he is struggling with very intense head nodding as well (though I haven't noticed this yet). He also has palallia, and stutters quite bad at the moment. We have tried a number of supplements, and have just started cbit therapy (only one session so far though). I have tried essential oils etc, but nothign pharmaceutical. I have recently been researching taurine and nac but have read positive/negative from both of thes so I haven't started giving him these yet. Starting tomorrow we are going gluten free, not dairy yet. Mostly I am looking for advice on supplements, as he has missed nearly 10 days of school in the last two weeks due to his tics. 

Other things I can think of....

He has had a cold sore from since I can remember, and is on a prophylactic antiviral. He had major improvement after three weeks of clarythromycin for a cough (so possibly pans??)  but I can't find a doctor who will prescribe me these without an obvious illness to have another try. I'm really at a total loss as to what is happening with his body and mind. We live very rurally in New Zealand, and it is almost impossible to find a decent health practitioner here. 

Off and on I give him melatonin (only 1.5 mg) so he can fall asleep at a decent hour, I'm wondering if this could affect his dopamine levels and exacerbate tics - does anyone have any experience with this?

That's a lot of random information, but maybe someone will have a few suggestions!

Cheers

Kristen

 

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My DS 13 developed additional tics at age 11, due to yeast overgrowth.  Kids like ours tend to have a yeast imbalance already, but the antibiotics exasperate it.  We use Saccharomyces Boulardii, along with his regular probiotic.  My DS also takes Candicid Forte.  

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I have read that - what probiotic do you give him? I thought I was giving him a decent one but after doing some research apparently it can exacerbate tics. I'll research those other things you mentioned. Would you give them along side nac and taurine? i'm afraid of overloading his system too

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I switch between Gutpro and a Jarrow brand probiotic.  Also use Jarrow brand Saccharomyces Boulardii.  Yes, I think it’s ok at same time as NAC and taurine.  My son hates taking supplements, so I do everything all at once...maybe not ideal.  The NAC is supposed to be split up throughout the day.  Unfortunately my son is not taking as much as I’d like.  One of his triggers is taking supplements.  

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