Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

rhyanen

Home IVIG approved through UHC anyone?

Recommended Posts

Yes, but not in-home. It was done at Children's Hosp. here, so the MDs took care of it all. I feel like the insurance co's in general, respect that more than private practitioners, unfortunately.  We're currently fighting BSCA for in-home IVIg through our private practitioner, don't have UHC anymore. DX of hypogammaglobulanemia, which doesn't warrant HD IVIg, unfortunately. 

Share this post


Link to post
Share on other sites

@tj21  Heelo again.  Saw you on Adults with Pandas thread..... We have UHC through my employer, JPMC. UHC agreed to accept our out-of-network NP in Northern California as in-network. She is the sole provider in 100 miles of us as Stanford refused to see my son. She recommends IVIG.  So UHC agreed that she is the best option for a provider but then refused to pay for IVIG. What was your son's diagnosis when you got the IVIG approved through UHC?  Everyone said insurance would not cover, but I think I should appeal.

 

Share this post


Link to post
Share on other sites

@beenthere - Amy Smith NP/RN ? That's a great idea, I haven't had the thought or energy to petition BSCA (our current ins.) to cover her, but will put it on my to-do list. We have always had hypogammaglobulanemia as the DX, and BSCA approved HD IVIg. We have lab tests showing, besides low total IgG, poor immunization response (done through UCSF Immunology Dept.), which I believe was required. 

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×