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Dr. Bock- PANS, Lyme, candida/yeast


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Has anyone worked with Dr. Bock in Red Hook, NY?  We have a 7 year old with PANS and possibly Lyme (explosion of symptoms in June, gradually improving with antibiotics but in past few weeks alarmingly worse) and a 5 year old who developed some behavioral issues that we think may be candida/yeast overgrowth (she had been on low dose antibiotics daily for two years for a medical issue that is now resolved and we recently noticed a surge of irritability and tantrums after reducing the strength of a probiotic that she had been taking for about three months).

We looked into seeing Dr. Bock for both kids and have already scheduled an appointment for one of them.  The paperwork just arrived in the mail- all I can say is wow... While we expected the very expensive first visit ($1000-$1500 seems to be standard with PANS/Lyme doctors), we were a bit shocked by the costs for follow up visits and basically everything else one could possibly charge for (phone calls, every minute that an office visit runs over time, medical records/letters of medical necessity- all at very, very high rates, beyond anything we have seen with any other specialist that works outside of insurance).  So we are just wondering if anyone has had success with Dr. Bock to help us feel that it's worth the extreme financial burden we will be signing up for. He does seem to have the kind of comprehensive approach that makes so much sense.  And we like the idea for our daughter with PANS of doing lots of testing from the start to figure out all the many layers that might be at play (vitamin deficiencies, gut issues, non-bacterial infections, etc.) , rather than discovering one after another by looking for more things after each treatment fails. Like many families, we are just feeling desperate...

Feel free to PM with anything you would prefer to share privately.

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I haven't worked with him, though I did hear him on Radio PANDAS some time back (you can find and listen if you like).

You can also find a few comments (people here have asked about him before) at the following links:

https://latitudes.org/forums/topic/21034-dr-horowitz-vs-dr-bock/

https://latitudes.org/forums/topic/20952-anyone-seeing-dr-kenneth-bock-in-ny/

https://latitudes.org/forums/topic/24938-dr-kenneth-bock/

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