Irrational loathing of something that others consider normal?

7 posts in this topic

I was wondering if anyone here knows about a thing that I have that I've heard about very occasionally, but it seems to be very rare - a horror of a particular thing, or in my case it's a word (see Desperately need to talk to somebody - poison words), not because I think it will cause something bad to happen but in its own right - that thing just is, in itself, a horrible thing to me.  And yet it's not something that anyone else considers a problem.  When I try to ask people about mine, they go "But it's a nice word". 

Has anyone any knowledge of this and how you go about getting over it?  Does anyone know of anyne who's ever recovered from this? 

I'm currently pinning all my hopes on seeing a psychologist, but even when that happens, I d afraid they'll never have heard of this or know what to do about it!

Share this post

Link to post
Share on other sites

My daughter is only 4.  She was diagnosed with Pandas last year, when she had just turned 3.  This is her biggest problem, and it's debilitating.  It stopped with antibiotics at first, but not anymore.  She will refuse to speak about whatever the fear is, and even deny it, but it will be obvious when she reacts with total insanity, sometimes so scared she gets violent. Some things I have been able to figure out and she would then admit and talk about were the color red, things that are square, a simple phrase.  All things that no one would ever guess could bother anyone so much.  She did have explanations for why they scared her so much.  It seems like she only got over one, when a new one would take over.  No advice.  Just wanted to let you know that it's normal in our world. 

Share this post

Link to post
Share on other sites

Yes, I've heard of this particular manifestation of OCD, and though my son never had compulsions or obsessions attached to just a single word, the other thoughts or fears that he would work very hard to avoid because they were, in and of themselves, somehow "bad," were overwhelming at times.  And like Plum99 has said, they tended to shapeshift, also.  If he was successful in working through and dismissing one, either via therapy or constant exposure exercise at home, quite often another, similar type of "taboo" would creep in to fill its place.

I do think that some regular therapy with a psychologist or therapist well-versed in OCD can help you, though in my son's case, anyway, he needed some additional leverage, as well.  I know you have a long history here on the forum (PANDAs, etc.), but I can't remember all the interventions you've tried in addition to antibiotic therapy, etc.  In our case, once the abx had tackled the underlying infection, my DS's "residual OCD" had managed to become pretty well entrenched in the years he was coping without the benefit of a PANDAs diagnosis or treatment.  So we found that an SSRI helped give him the additional leverage he needed to implement the tools and strategies that therapy provided for beating back the intrusive thoughts, etc. OCD brings to the table.

Share this post

Link to post
Share on other sites

Thank you, both of you!  I was thinking it was just me, and that's never a goood feeling.  And if it's commonish in PANS cases, and there are a fair amount of those about, maybe that means thetre's a chance that a psychologist I see might be aware of it.  Yes, mine shapeshift something awfull, too.  I suspect there are underlying psychological issues, but I also suspect that they wouldn't be doing this if some mechancial fault in my brain wasn't just convinced that something must be wrong and was just using them as inspiration for what kind of terrible thing might be happening.  That mae sense, sdo you think?

I should upaate my signature.  I'm currently on Lyme disease.  We've gone back to Amy Smith and she has me on various preliminary things to try and get me in better shape before starting on antibactieral herbs.  HOPEFULLY shouldn't be long now; we've had a ludicrous amount of delays trying to get hold of the last preliminary thing!

Unfortuntatrely I can't take any kind of psychoactive medications because my OCD won't let me.  When I've forced myself to taethem anyway, t goes into screemaing lockdown claiming that I can't know whether it's safe to do ... pretty well anything I'm trying to do ... or whethet it's just the drugs making me think it is, and I'm practically unable to move at all until enough time has passed that I can feel sure the drug is out of my system.  It's really inconveniaent beause I can't even take half the standard herbs for Lyme diseas (specifially, notweed, cat's claw, skullcap and ashwaganha), because they're supposedd to have psychoactive effects as well as pyhiscal effects.

Any mors tories fro olther peple would be apprecaited, esppecially if you can say anything about how you got over it.

Share this post

Link to post
Share on other sites

Wombat140 - yes, I've dealt with this too (especially fear of the color red, which is my favorite color)! If u can't go down the med route, I'd highly suggest treatment with a therapist trained in ERP (exposure response prevention). :)

MomWithOCDSon likes this

Share this post

Link to post
Share on other sites

My daughter was afraid of the color red for months before I got any information out of her! To the point that she didn't want to leave the house, and was attacking other kids wearing red.  Somehow it was also her favorite, and she would request things red, but would also go completely insane, have panic attacks, and be miserable.  

Share this post

Link to post
Share on other sites

That is a one.  Plain bizarre, as well as exhausting.  Well, six year olds don't do making sense anyway and when you cross that with PANDAS...  Glad if she's not sp bad with it now.

Somebody on another forum suggested that it might have something to do with a traumatic event - she gave the ex\ample of someone who's in a car accident and there's a cherry air freshener in the car and thereafetr they hate the smell of cherries without necessariy  even knowing why.  That makes a kind of sense to me, it does seem to fit the way it behaves to suggest that it's a kind of conditioned response.  But I don't know what the event would have been unless it was the OCD onset itself.  That was traumatic right enough, since it was the famous out-of-a-blue-sky PANS onset and I had no idea what was going on, only that I felt as if my mind was being sucked out htrough a straw every time a car went past and that everyone was telling me that there was nothing and to stop being stupid - since they had no idea what was going on either and could only think I was just play-acting for some reason!  But what the connection might have been, or where that would get you, I don't know.

It seems t me that the way it works is that I mean roughly the same thing by it as most people - well, I think I do - but it's the associations that are off.  When I think of that word, I think of the most creepy possible images that you could connect it to, and if I think of it applying to anything my mind immediately jumps from there to those.

What do you mean by ERP?  The name ERP always suggests to me being faced with the thing and held down by three strong men until the screaming stops.  Well, with me it really would be a case of three strong men and also it does't seem to work; I can carry on being in a state for as long as we've ever tried it and the more efforts people are making to force me to stop, the more I/it fight back. 

In any case, it looks like being a while until I can get to see anyone; first I haveto see the local psychologist, who assessed me a while bac and would be making the referal, the referra, to discuss her conclusions and what's the best thing to do, and she says it's a two or three week wait just to see her.  In the meantime, these wrod things are giving me the runaround and getting out of control, getting mixed up wth everything - they've become my main obsession now, in the last month or two.  Can anyone make any hints about how you make friends with a thing that you've developed a horror of?  I've been maing tentative fforts but it's often hard to know wher to get a foothold - how to come up with any way of seeing it as anything other than terrible, and how to get it to stick once I have.

By the way, here's a thing. 


PLEASE READ - Important: please read this posting before replying to anything I post: http://latitudes.org/forums/index.php?showtopic=24834#entry186170

Yes, this is the word I'm talking about (or the maion one - I have various secondarty ones too at the moment), but please, don't say it to me for exposure's' sake, as I can't cope with that at the moment.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   38 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:

      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic