Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
puppydog

Help! Desperately need way to hospitalize adult - medical problems from PANDAS

Recommended Posts

Hi: I am an adult with PANDAS/PANS and am so sick, malnourished and very low in three vitamins from food restrictions, fear of meds, so not taking any. I need a doctor who will hospitalized me on a regular (non-psychiatric ward) to help me take vitamins, figure out the underlying infections, and treat my immune system problems. Currently, I am so fearful, I cannot get out of bed for the most part. I am, however, will to travel or relocate to a Northeastern city to get help. Please suggest doctors or hospitals who may be able to help me get healthy. THANK YOU!

Share this post


Link to post
Share on other sites

I'm sad to see that you have not gotten any suggestions. Even worse, I don't really have any good suggestions myself, partly because I live in Canada where the medical system is quite different.

 

Are you on your own, or do you have any family or friends regularly checking on you?

Share this post


Link to post
Share on other sites

I'm sorry I don't have any specific suggestions for you, either, unfortunately. Most PANDAS/PANs specialists of which I am aware are generally booked well into the future and focused almost solely on office visits and/or potentially IVIG in a clinical setting. As for full-on hospitalization, though, I can't say for certain that there are any PANDAS/PANs experts who would oversee that. Based on your description, it seems to me you would benefit best from either a PANDAS/PANS specialist or an integrative/functional medicine professional, but in my experience, few of those are affiliated with hospitals.

 

It sounds as though you are dangerously, medically ill, however, given your eating restrictions, etc. I might suggest that you reach out to either one or both of the larger medical institutions (Stanford Medical in California or Massachusetts General in Boston) and see if they can/will help you. Both of these institutions recognize PANDAS/PANS and have affiliated specialists, but I'm just not clear as to hospitalization.

Edited by MomWithOCDSon

Share this post


Link to post
Share on other sites

You and I are in a similar boat. Family family family. You need to have someone who you can take care of you. What has helped me some so far is zinc picolinate ~30mg /day and magnesium chelate. Also taking methylated B complex (Emerald Labs), Vit C and Vit D. But I'm still having issues and trying to figure it out.

Share this post


Link to post
Share on other sites

If you felt better when catching colds in the past, (perhaps like a mini IVIG), then maybe Thorne Moducare would push immune system to more Th1 from Th2 (Th2 causes more autoantibodies). But its probably different for each person.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...