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Some of my daughters tests are coming back and I think we are getting a better picture of what is wrong! PANS!

 

Very high Mycoplasma (almost 3000) and some of her Lyme bands are positive. I know this does not guarantee she has Lyme and we need further testing. But I want to get a jump on things in case she does and research doctors. I have read over and over you want to go to a LLMD because they are good at treating co-infections as well????

 

Anyways, any recommendations? (By the way, I do have an appointment next week with a PANDAS/PANS specialist). I may end up just staying with this person but just wanted to know peoples thoughts on this.

 

Thank you!

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Some of my daughters tests are coming back and I think we are getting a better picture of what is wrong! PANS!

 

Very high Mycoplasma (almost 3000) and some of her Lyme bands are positive. I know this does not guarantee she has Lyme and we need further testing. But I want to get a jump on things in case she does and research doctors. I have read over and over you want to go to a LLMD because they are good at treating co-infections as well????

 

Anyways, any recommendations? (By the way, I do have an appointment next week with a PANDAS/PANS specialist). I may end up just staying with this person but just wanted to know peoples thoughts on this.

 

Thank you!

Hi! So good that you uncovered the mycoplasma and potentially Lyme. I believe you have an appt with Amy Smith next week correct? If so, that's exactly where you want to start and she will be very able to help you deal with mycoplasma (with the right antibiotics and/or combination of antibiotics) and she'll be able to look at your Lyme results to advise you further in that area. Amy recently moved offices - she was previously located in the same office as my son's LLMD but if she feels you need to see an LLMD she will advise you. For now, you should tackle that mycoplasma asap with antibiotics and then figure out how to go after Lyme if she indeed has it. Sounds like you've done a great job jumping on this early. Great job!!! Hope your daughter feels better soon.

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