moosiebell Posted November 9, 2016 Report Share Posted November 9, 2016 My 17 yo ds has had pandas for over 5 bloody long years, complete with diagnoses of Lyme, bartonella and an inflammatory condition secondary to mold. He sometimes does well, other times limps along, but over the past couple months he has slowly gotten worse again. When we were in a house with mold (moved 3 months ago) his anxiety was more generalized with a moderate degree of OCD-- reassurance seeking, feeling he was responsible and guilt-- but with the help of a 504 plan and Dr. M in CT, we have managed where wasn't great, but we had good and bad days. Over the past week, his symptoms took a nose dive. One worry is literally cascading onto the next, and his brain is literally torturing him. I don't know if there is an accompanying virus or if what, but he also vomits after he tries to eat anything, and thus didn't eat at all yesterday. I took him to the urgent care on Monday, where his psychiatrist (who has only seen him once-- my fault... I have been so afraid of psych meds-- called in klonopin 1-2 mg every 6 hours prn with an appt on Thursday. The klonopin takes the edge off, but he still cannot escape his thoughts. He has been off antibiotics since February until Dr. M called in minocycline about a week ago. I thought his symptoms 5 years ago was our bottom but it is even worse now. I am so scared he will need to be hospitalized. I am so scared they won't understand PANDAS. I don't know what to do. We are in southern Maine. I will call Dr. M again this morning, but at this point there is no way I can get him in a car to travel 4 hours. Thank you. Link to comment Share on other sites More sharing options...
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