HopeinHIM Posted August 24, 2016 Report Share Posted August 24, 2016 Our DS12 went through Bart treatment and then prophylactic PANS Zithromax for past few years. Both Lyme's Doc and PANS doctor are very well known and reputable. We finally had a top Immunologist enter into our insurance so we switched. This Immunologist treats and understands PANS. She diagnosed our son w/chronic fatigue and POT's like symptoms . NO LYMES!! He is too tired to go out most days. This new immunologist suggested removal of all dairy and grains (even clean products) as well. HE HAS NOW LOST 15LBS. . We have doubled his calories and no gain. So this plus the chronic fatigue is awful to watch. This doctor claims its all Dysbioses from too much anti biotics in the past and that combined with some immune abnormalities and leaky gut has created this "Post Viral Chronic Fatigue". Yes we always gave good pro biotics! Our son feels he has better thinking on the diet for sure but he is so weak. Much of the LYMES like Bart symptoms are quieted down (not gone) and what remains is complete exhaustion. It's been this way since February. Immunologist says the Lyme's piece is FINISHED and it's not one specific pathogen. She feels that If we treat with further meds we will do more damage!! But the old Lyme's doc says it may be Bart still. UHG!! I am doing some herbs like Houttynia, Kudzu, DanShen and immunologist has him on some cycles of Tinizidol and diflucan for the Dysbioses. She says that these meds cycled with diet changes and time will change things. With the wt loss he now doesn't bounce back after his fatigue attacks. All clinical diagnoses too. Labs only say weak immune system. ANYONE have any thoughts?? Link to comment Share on other sites More sharing options...
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