Tnmom Posted July 29, 2016 Report Share Posted July 29, 2016 Hey Everyone, Sorry to bug again but I have a quick question.....does a quick question exist??? We have been busy this summer treating our daughter for lyme and have had much success and are extremely thankful for the progress so far. I am always hesitant to start medicine for she has had some bad reactions in the past- namely azithromycin and Valcyclovir. we with trepidation began doxycycline and have been on for 3 months and it has been nothing short of amazing. Her mood is about 95% (apart from a 4 week cycle of regression that sends me into PTSD but she comes out of). Her symptoms have always been neuropsych in nature....she has never displayed much physical symptoms at all. My main concern apart from Lyme has been bartonella.....so we are on and continuing to add to- buhner protocol for lyme. bartonella. and myco (she had high IgM titers in jan/16 for myco....) Her LLMD just NOW is suggesting adding Rifampin...... I thought this should have been part of her protocol from the get go but he is suggesting it now. Here the question- she is doing really well MOOD wise currently on JUST Doxy.....her cognition is SLOWLY SLOWLY improving.....she still freaks me out during regressions where she (9 years old) can't remember the days of the week for example....but it improves.....but cognition and short term memory are still her strongholds...... I don't want to screw up her mood )))) at this point she is not displaying mood issue..... Rifampin is chock FULL of dyes and crud.....I am nervous about that..... Does anyone have any thoughts or input on whether Rifampin is worth the effort??? What is your experience??? I know we will ultimately make the decision but I always get somewhat fearful before introducing a new med....not herbs...but synthetic meds.....go figure?? OH BTW and FWIW and any other acronym I could think of....school starts in 5 days...dum da duhhhhh thanks!!!!!! Robyn Link to comment Share on other sites More sharing options...
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