BeeRae22 Posted July 27, 2016 Report Share Posted July 27, 2016 I posted at the beginning if summer about dd10- regressed after removal of Bactrim for the 3rd time. So here we are, mid summer- I had hoped to have her off of abx by now, and now we're back up to 3 abx cocktail again of zith, Bactrim & mino. So, we added the mino back in (had been off for over a year) and I'm not sure if its doing anything, or not? I am going to try removing it, but I don't know if I should-- dd is finally rounding the bend, but PANS is still there, humming under the surface. I think it's the Bactrim that's helping, but can't be sure of that either! Love our doctor, but I often feel as though I am taking the responsibility for the decisions regarding dd's treatment..... We could try this, we could add that, we could change this-- how am I supposed to know what to do? 2 1/2 years of heavy abx treatment now, and no end in sight how am I going to live with myself if there are consequences of the treatment when ultimately I am the one that has to make these decisions? Now that she's had such a tough time removing Bactrim again, I am terrified to take her off it again. Backing off of it again during the school year seems like a risky proposition, so am I looking at another whole year before I try again? What do you do when you're "hooked on abx"? Keep going and going? Anyone done any real research on long term abx affects? Something I should look into more, but regrettably I lost my ambition to research much about any of this some time ago... It's exhausting and seems to go in circles. Dd still not back to baseline like she was in May Link to comment Share on other sites More sharing options...
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