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  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

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Hello all. I haven't been active here for quite a while. My 10 year old son has had PANDAS since he was 7. We've had our ups and downs and ins and outs. But never again returned to baseline.

 

Recently my son was diagnosed with temporal lobe epilepsy. I can't seem to find a connection between the two disorders bit I have tried. He is on Teileptal now but still having seizures. We follow up with the Nuero tomorrow.

 

He is also on 50g keflex 600mg Trileptal 3 mg intunive and 7.5 mg lexapro.

 

Here's the shocker. We were having blood work done for he Nuero and I asked her to throw in an ASO and it was just slightly over the reference range. (Maybe 20 points or so) I was shocked!!! Now when he was newly diagnosed his levels were 5x the reference range. Should I be concerned about a steep infection?!? Really I'm shocked. Even when his level was through the roof he didn't have a sore throat and wasn't sick.

 

What are you impressions? Should I have a swab done? I'm at a loss.

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