SEAMom Posted June 30, 2015 Report Share Posted June 30, 2015 My DS15 starts his freshman year of high school in September. His PANS started the beginning of March and we were lucky enough to figure it out and get him treated with abx by the end of April. He is still on Augmentin. He has made a ton of progress this past month. His symptoms have decreased about 90%. Since he missed three months of school we decided to try and get him back in a learning/school environment. We enrolled him in a video game development camp. This is something that HE wanted to do. It was his decision to go. After two days of camp he was unable to go back. His symptoms came back full force. Luckily it took only about 48 hours to recover back to where he was before the camp. Clearly even though his symptoms had decreased a great deal his BRAIN has not healed or recovered fully. Do we know how long this process could take??? Is it a good idea or bad idea to slowly introduce academic work now? He has math he needs to make up that he missed this spring or he will have to repeat Algebra 1. Can I slowly give him some of it over the summer? Or is it a bad idea while his brain is still healing? Do I need to get a 504 plan? or an IEP? What do I ask for? What would my child need? Parents of PANS/PANDAS kids who are in high school, what was there experience like? I really am terrified and want to plan ahead as much as I can. Would love to hear your advice, experiences! Thanks SEAMOM Link to comment Share on other sites More sharing options...
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