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Michel12

Michel12 will be getting plasmapheresis

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So I have spoken to Dr. L. and my parents and her both agreed to try plasmapheresis. I will be doing it for 5 days I think. I was told I might see improvement right away at 3-4 weeks and 3-4 months. My symptoms are still very severe and I wanted to here from people who have had it done. What benefits did they notice etc.

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I'll probably have to do this. Do you have to go inpatient hospital or can it be done outpatient? I hate being IN the hospital. I hope it helps.

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So I have spoken to Dr. L. and my parents and her both agreed to try plasmapheresis. I will be doing it for 5 days I think. I was told I might see improvement right away at 3-4 weeks and 3-4 months. My symptoms are still very severe and I wanted to here from people who have had it done. What benefits did they notice etc.

I actually don't think we are going to do the plasmapheresis now. My parents are deciding against it.

Edited by Michel12

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my daughters both had it. one had it twice. I will be happy to share more privately If you or your parents would like to hear about it. it was generally very helpful, but did not "last" , both have needed additional tx after it. it didbring much help Iin two very severe cases and offered some relief.

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